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Comments (2,054)

Two biopsies for me - no big deal. After bloodwork for a routine physical in March,...

https://connect.mayoclinic.org/comment/1252387/

Discussion: How many biopsies?

Support Group: Prostate Cancer

Posted: Mar 7 9:13am

I'm not sure if your onco is saying there are no studies on Orgovyx+abiraterone, or Lupron+abiraterone,...

https://connect.mayoclinic.org/comment/1110914/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 24, 2024

Somewhat surprised by your radiologist's perspective... Not sure why he says it requires "closer medical management..."...

https://connect.mayoclinic.org/comment/612431/

Discussion: Hot Flashes and Hormonal Therapy for Prostate Cancer

Support Group: Prostate Cancer

Posted: Jun 29, 2021

It's been about 18 months since 34 rounds of SBRT 6 months post RRP 3/25/21. I...

https://connect.mayoclinic.org/comment/855726/

Discussion: What are the common side effects after salvage radiation?

Support Group: Prostate Cancer

Posted: May 7, 2023

hmm...My urologist doesn’t give me much feedback and just says “stay on the Luperon forever” Does...

https://connect.mayoclinic.org/comment/1196350/

Discussion: How long do Lupron side effects last after treatment concludes?

Support Group: Prostate Cancer

Posted: Dec 24, 2024

I'm 60 and had pretty much the same diagnosis as you. I did SBRT (accelerated RT)...

https://connect.mayoclinic.org/comment/1197858/

Discussion: Gleason 7 (4+3) radiation, but ADT also? Over treatment?

Support Group: Prostate Cancer

Posted: Dec 27, 2024

I had a RP at UCSF in 2008. My Gleason was 4+4 at the time. For...

https://connect.mayoclinic.org/comment/1151850/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Oct 4, 2024

@chamblee54 My Gleason scores were similar to yours. I also saw multiple ROs and Urologists. Eventually,...

https://connect.mayoclinic.org/comment/1025992/

Discussion: Brachytherapy , but they came across a Stricture and cancelled

Support Group: Prostate Cancer

Posted: Mar 2, 2024

The rule about “every month of treatment it takes to recover your testosterone” is due to...

https://connect.mayoclinic.org/comment/1260259/

Discussion: ADT Side Effects: Anyone had increased shortness of breath at rest?

Support Group: Prostate Cancer

Posted: Mar 17 10:58am

Am I understanding it correctly, that by "proton radiation, 5 treatments only" -- you mean no...

https://connect.mayoclinic.org/comment/1321866/

Discussion: Starting Proton Treatments for Prostate Cancer: Any experiences?

Support Group: Prostate Cancer

Posted: Jun 6 4:38pm

@hanscasteels I am a Prostate cancer patient of exactly one year. I've had the PSA, Digital...

https://connect.mayoclinic.org/comment/1287929/

Discussion: The Waiting Room: A Post Treatment Parable for the Terminally Stable

Support Group: Prostate Cancer

Posted: Apr 23 7:23am

Thanks for the reply. I had a Gleason 4+4. I’m taking the shorter course, as the...

https://connect.mayoclinic.org/comment/1296271/

Discussion: Glow Club Photon and Proton Beam Class at Mayo AZ

Support Group: Prostate Cancer

Posted: May 4 9:08am

I'll echo @robertmizek 's experience that combining ADT like Orgovyx with a second-generation ARSI like Erleada...

https://connect.mayoclinic.org/comment/1128153/

Discussion: PET Scan Results in

Support Group: Prostate Cancer

Posted: Aug 21, 2024

Waiting to meet with Medical Oncologist. I'll likely do at minimum having the spots radiated and...

https://connect.mayoclinic.org/comment/1096685/

Discussion: PSMA PET scan found cancer in rib and #3 vertebrae. Any experience?

Support Group: Prostate Cancer

Posted: Jun 30, 2024

I was on Orgovyx. Within days my hands, and some of the fingers became very painful....

https://connect.mayoclinic.org/comment/1082881/

Discussion: Eligard: any correlation with carpal tunnel?

Support Group: Prostate Cancer

Posted: Jun 8, 2024

I had some issues withe the VA and psa testing. However, anyone that has a Quest...

https://connect.mayoclinic.org/comment/901613/

Discussion: New to Prostate Cancer with a boatload of questions, but who to ask?

Support Group: Prostate Cancer

Posted: Jul 24, 2023

Hi Kevin. Thx for your response! Very helpful. May I pick your brain for moment? I...

https://connect.mayoclinic.org/comment/890744/

Discussion: Choline C11 PET scan: Anyone had it? Is it useful?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

I'm 69. After a year of Firmagon injections, I was switched to Zytiga, and I have...

https://connect.mayoclinic.org/comment/980482/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Dec 14, 2023

So how is Nubequa different than Orgovyx? I too am having huge problems wth the SE's...

https://connect.mayoclinic.org/comment/1249358/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3 10:09am

@05271935 Yes a Gleason Score of 10 really needs attention. Did they offer a Decipher test?...

https://connect.mayoclinic.org/comment/1202597/

Discussion: Radiation therapy effects: Can it cause brain fog & memory issues?

Support Group: Prostate Cancer

Posted: Jan 2 4:42pm

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