Prostate Cancer Support Group

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The purpose of ADT(Orgovyx, in my case) is to reduce the testosterone which feeds the cancer...

https://connect.mayoclinic.org/comment/1214342/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Jan 16 9:34am

"However, the emotional side is very strange as I am either overly happy and joking, or...

https://connect.mayoclinic.org/comment/1204935/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 6 4:07am

My radiation treatments were 5 days/week for about 8 weeks...and a lengthy commute. The commute was...

https://connect.mayoclinic.org/comment/1384179/

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Sep 1 11:42am

The PET/PSMA showed tumors in the prostate bed. The PET/PSMA was almost 12 months before the...

https://connect.mayoclinic.org/comment/1363678/

Discussion: How to interpret PSA

Support Group: Prostate Cancer

Posted: Aug 4 2:46pm

hbp, I am also Gleason 9. I had SBRT 5 session treatment at UCLA by Amar...

https://connect.mayoclinic.org/comment/1334591/

Discussion: No testosterone on Lupron, can I build muscle strength by working out?

Support Group: Prostate Cancer

Posted: Jun 24 11:57pm

Vitamin D is a standard recommendation for prostate cancer people on drugs. 2000 IU is about...

https://connect.mayoclinic.org/comment/1270061/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 30 11:12am

As like others; I've been down this same road. Prostatectomy and 37 rounds of radiation treatments...

https://connect.mayoclinic.org/comment/1096887/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jun 30, 2024

Yes. I started with Lupron but got bad tachycardia episodes, suicidal thoughts, and severe depression. Plus,...

https://connect.mayoclinic.org/comment/1280026/

Discussion: The end of my Chernobyl Spa Days

Support Group: Prostate Cancer

Posted: Apr 12 10:26am

I did radiation and six months of ADT. ADT was terrible for me. I started with...

https://connect.mayoclinic.org/comment/1251547/

Discussion: BCR Prostate cancer. Need Opinions

Support Group: Prostate Cancer

Posted: Mar 6 7:59am

@tjmayo I ran out of options and just tried emailing: "Hi Dr. Bourla, I’m sorry to...

https://connect.mayoclinic.org/comment/947145/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 13, 2023

In 11/2024, the Orgovyx was clearly still in your system so, except for being certain that...

https://connect.mayoclinic.org/comment/1300834/

Discussion: PSA rising fast after SBRT

Support Group: Prostate Cancer

Posted: May 9 11:34pm

The side effects are generally the same... I've done both, 18 months of Lupron and later...

https://connect.mayoclinic.org/comment/1155269/

Discussion: Looking for feedback - Lupron vs Orgovyx

Support Group: Prostate Cancer

Posted: Oct 11, 2024

I'm sorry to hear your husband's news. The main chronic side effects of testosterone deprivation are...

https://connect.mayoclinic.org/comment/1354615/

Discussion: Recurrent prostate cancer and Eligard.

Support Group: Prostate Cancer

Posted: Jul 23 12:25pm

I've been on Erleada (a similar -lutamide) since 2021, and expect to be on it forever,...

https://connect.mayoclinic.org/comment/1318827/

Discussion: How long can you be on Xtandi?

Support Group: Prostate Cancer

Posted: Jun 2 4:44pm

I’ve been on Orgovyx for 4 months and doing well enough. I bought a bowflex and...

https://connect.mayoclinic.org/comment/1128335/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 21, 2024

Hey man, thanks for the heads up. Tell me about depression and insomnia? Did it creep...

https://connect.mayoclinic.org/comment/1369591/

Discussion: Orgovyx & Gynecomastia

Support Group: Prostate Cancer

Posted: Aug 13 7:33am

Oh buddy, did I ever!! Worse flashes, more exhaustion, even greater appetite and an overwhelming crabbiness...

https://connect.mayoclinic.org/comment/1272358/

Discussion: Are there withdrawl symptoms immediately after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Apr 2 8:27am

Thanks. I pretty much insisted on orgovyx versus lupron myself because of the results that have...

https://connect.mayoclinic.org/comment/1035856/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 18, 2024

Thank you again. With o Orgovyx beginning tomorrow and radiation therapy next Friday, I have a...

https://connect.mayoclinic.org/comment/792662/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 5, 2023

It has been prescribed but waiting to see if insurance will approve. Pre-PSMA scan, would have...

https://connect.mayoclinic.org/comment/755198/

Discussion: Stage 4 prostate Cancer: Firmagon + Abiraterone?

Support Group: Prostate Cancer

Posted: Sep 29, 2022

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