Prostate Cancer Support Group

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Comments (1,260)

tjmayo: Orgovyx 3+ mos; has not been bad for me. Definite changes, but liveable/manageable. Clearly men...

https://connect.mayoclinic.org/comment/863753/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 21, 2023

I know the anxiousness you are experiencing, I went through it all last year. I am...

https://connect.mayoclinic.org/comment/821612/

Discussion: Question on 5 proton treatments with ADT

Support Group: Prostate Cancer

Posted: Mar 6, 2023

After a prostatectomy, your PSA should drop to undetectable. If it doesn’t, then there is prostate...

https://connect.mayoclinic.org/comment/1382033/

Discussion: What would you do if PSA stayed at 0.15 after prostatectomy?

Support Group: Prostate Cancer

Posted: Aug 29 12:40pm

CALL IT A DAY? Hi All. I am 74 and at 73 I was diagnosed with...

https://connect.mayoclinic.org/comment/1320311/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jun 4 2:17pm

First, good to hear... My experience, on this go round, based on a Plarify scan in...

https://connect.mayoclinic.org/comment/990656/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Jan 3, 2024

Yeah, it’s sometimes the radiation that’s causing the diarrhea. According to the Mayo Clinic. One study...

https://connect.mayoclinic.org/comment/1345438/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 10 6:53pm

To @jeanadair123 All of the ADT Products affect people in pretty much the same way. I’ve...

https://connect.mayoclinic.org/comment/1327658/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Jun 15 10:43am

Considering that everybody else on active surveillance has normal testosterone levels, It sure shouldn’t harm you...

https://connect.mayoclinic.org/comment/1360880/

Discussion: Anyone following a wait and see with a Gleason 3+3

Support Group: Prostate Cancer

Posted: Jul 31 3:26pm

As promised “ after shopping “ I want to quickly answer your query about the monthly...

https://connect.mayoclinic.org/comment/1390716/

Discussion: Issues with ProACT incontinence value

Support Group: Prostate Cancer

Posted: Sep 10 6:44am

I just celebrated my 2 yr anniversary of ending treatment, sbrt and adt. I received a...

https://connect.mayoclinic.org/comment/1303944/

Discussion: Testosterone- confused

Support Group: Prostate Cancer

Posted: May 14 10:34am

Stage 4, Gleason 9, mets to iliac bone and regional lymph nodes. I took a digarelix...

https://connect.mayoclinic.org/comment/1307618/

Discussion: Abiraterone alone for HT ADT therapy for PC

Support Group: Prostate Cancer

Posted: May 19 10:13am

Be aware that the PARP inhibitor is very hard on the body. When I was on...

https://connect.mayoclinic.org/comment/1156343/

Discussion: Onward with durable remission

Support Group: Prostate Cancer

Posted: Oct 13, 2024

My Experience. When I first found out I wes scard sh..less. I read a lot and...

https://connect.mayoclinic.org/comment/963319/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 12, 2023

I recently switched to Orgovyx after being on Lupron for 7 months. I experienced all the...

https://connect.mayoclinic.org/comment/1240010/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 18 1:45pm

I was almost 67 years old when I started treatments. I started the 3-month injections of...

https://connect.mayoclinic.org/comment/1204418/

Discussion: Lupron Depot: Weakness and instability side effects

Support Group: Prostate Cancer

Posted: Jan 5 9:57am

Each person's journey through this is unique. As you may have seen from the comments, reactions...

https://connect.mayoclinic.org/comment/965477/

Discussion: Eligard and radiation: What can I expect?

Support Group: Prostate Cancer

Posted: Nov 15, 2023

My case study is amazingly similar; i.e. Gleason 9, Orgovyx nearing 9 months, 5 weeks/ 25...

https://connect.mayoclinic.org/comment/1246643/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Feb 27 12:30pm

Thank you for that—it means more than you know. And yes, writing helps... it’s cheaper than...

https://connect.mayoclinic.org/comment/1274845/

Discussion: A guided tour to the real conundrum of treatment choices

Support Group: Prostate Cancer

Posted: Apr 5 11:56am

Do you know what your Gleason score is? That tells you how aggressive your cancer is...

https://connect.mayoclinic.org/comment/1141458/

Discussion: Confusing Messaging about Prostate Cancer

Support Group: Prostate Cancer

Posted: Sep 14, 2024

I completed my treatment in May 2023. I had 5 doses of high beam Proton radiation...

https://connect.mayoclinic.org/comment/1051181/

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Apr 15, 2024

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