Prostate Cancer Support Group

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Just met my MO for the 1st time. She ordered another PSMA PET scan which I...

https://connect.mayoclinic.org/comment/1349789/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: 5 days ago

Started Orgovyx last October 2024. PSA is down from 5.5 to .1 after 6 months months....

https://connect.mayoclinic.org/comment/1309827/

Discussion: Abiraterone alone for HT ADT therapy for PC

Support Group: Prostate Cancer

Posted: May 21 5:59pm

Almost the same, except the timing. Mine returned after ~3 years., but at low levels (...

https://connect.mayoclinic.org/comment/1345762/

Discussion: PSA detectable 18 mos after prostatectomy

Support Group: Prostate Cancer

Posted: Jul 11 10:08am

I think that your prognosis is good. I had surgery at age 72 and Salvage Treatment...

https://connect.mayoclinic.org/comment/1351410/

Discussion: Being treated for Gleason 9

Support Group: Prostate Cancer

Posted: 3 days ago

"Close to 70% of people with PC are cured or at least go into long-term remission."...

https://connect.mayoclinic.org/comment/1333802/

Discussion: Adding a second medicine question

Support Group: Prostate Cancer

Posted: Jun 23 9:27pm

I'm starting Orgovyx at the end of this month to replace Firmagon (after 2½ years). I'm...

https://connect.mayoclinic.org/comment/1055388/

Discussion: Starting Orgovyx - any advice based on experience?

Support Group: Prostate Cancer

Posted: Apr 22, 2024

Orgovyx was covered under Tier 5 (25% copay) of my Part D Medicare drug plan, and...

https://connect.mayoclinic.org/comment/974736/

Discussion: SBRT vs. Robot-assisted radical prostatectomy

Support Group: Prostate Cancer

Posted: Dec 4, 2023

I was 68, 4+3, high Decipher score, PSA 7.8, good PSMA-PET. I chose SBRT with a...

https://connect.mayoclinic.org/comment/1241929/

Discussion: Difficulty In Deciding on IMRT or Proton Therapy

Support Group: Prostate Cancer

Posted: Feb 21 7:16am

They'll just radiate the node. And you'll get a 1 after the N. I'm familiar with...

https://connect.mayoclinic.org/comment/1284375/

Discussion: What do you do when one lymph node on PSMA is inconclusive ?

Support Group: Prostate Cancer

Posted: Apr 18 2:04am

I am getting ready to start ADT with Orgovyx and have been reading all about the...

https://connect.mayoclinic.org/comment/1342658/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 6 8:41pm

The placement of markers & SpaceOar was completed with any major problems besides pressure down there....

https://connect.mayoclinic.org/comment/1296793/

Discussion: Help-what treatment plan has anyone selected for Perineural invasion?

Support Group: Prostate Cancer

Posted: May 4 5:37pm

Also, injections (Lupron or Firmagon) are tough because you get acute side-effects from a big dose...

https://connect.mayoclinic.org/comment/1301744/

Discussion: What side effects have you experienced from SBRT for prostate cancer?

Support Group: Prostate Cancer

Posted: May 11 10:47am

If you could get ADT soon it will stop your cancer from growing and can give...

https://connect.mayoclinic.org/comment/1313622/

Discussion: PSA test results, should I start my treatment sooner?

Support Group: Prostate Cancer

Posted: May 26 7:00pm

Fellow cancer patient here just weighing in with what I’ve been able to find. My doctor...

https://connect.mayoclinic.org/comment/1120373/

Discussion: Does ADT actually kill cancer cells?

Support Group: Prostate Cancer

Posted: Aug 8, 2024

My understanding is that Casodex blocks testosterone from getting into cancer cells while drugs like Lupron...

https://connect.mayoclinic.org/comment/1120148/

Discussion: Does ADT actually kill cancer cells?

Support Group: Prostate Cancer

Posted: Aug 8, 2024

started orgovyx almost 3 weeks ago..initial fatigue with loading dose. Had some insomnia..going to the gym..but...

https://connect.mayoclinic.org/comment/1117130/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 3, 2024

I would think that is excellent. If your nadir was "undetectable" then recurrence would be indicated...

https://connect.mayoclinic.org/comment/1061232/

Discussion: What PSA to expect after radiation and ADT?

Support Group: Prostate Cancer

Posted: May 3, 2024

Thanks. I am not advocating taking an Orgovyx "break", rather the psychological boost knowing I ____could____...

https://connect.mayoclinic.org/comment/1014944/

Discussion: Radiation + ADT

Support Group: Prostate Cancer

Posted: Feb 13, 2024

My Orgovyx experience was a bit different. My T was 600 before starting. Three months after...

https://connect.mayoclinic.org/comment/1312301/

Discussion: Testosterone Recovery after stopping orgovyx

Support Group: Prostate Cancer

Posted: May 25 7:47am

Everything @jeffmarc wrote, plus sometimes they start you on the ARSI right from the beginning, paired...

https://connect.mayoclinic.org/comment/1294487/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 1 5:15pm

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