Prostate Cancer Support Group

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Comments (1,013)

This is the heart of the matter for me. I had three months of Eligard then...

https://connect.mayoclinic.org/comment/1110885/

Discussion: Does ADT actually kill cancer cells?

Support Group: Prostate Cancer

Posted: Jul 24 8:23am

I started orgovyx on 9/2/23 and am on a six month regime. I can only speak...

https://connect.mayoclinic.org/comment/984589/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Dec 21, 2023

I'm on orgovyx as opposed to Lupron, but, maintenance seems very doable, gains are tough. It...

https://connect.mayoclinic.org/comment/997471/

Discussion: Lupron Treatment Duration: How long were you on it?

Support Group: Prostate Cancer

Posted: Jan 15 6:59am

My line of thinking follows yours. I've been on Orgovyx since January and the plan is...

https://connect.mayoclinic.org/comment/1101114/

Discussion: Time to Castrate Resistance: Anyone remained castrate sensitive 5+ yrs

Support Group: Prostate Cancer

Posted: Jul 7 2:56pm

Orgovyx was covered under my Medicare Part D drug coverage as a Tier 5 med w/...

https://connect.mayoclinic.org/comment/1036375/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 19 9:18am

Starte taking orgovyx about two weeks ago. was looking to see if anyone had muscle/body aches?...

https://connect.mayoclinic.org/comment/1037525/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 21 7:09am

Undetectable PSA means that I'm still responding very well to Orgovyx, Erleada, and my radiation therapies...

https://connect.mayoclinic.org/comment/1124990/

Discussion: ADT/ ORGOVYX Day 45; Told Radiation Is Next

Support Group: Prostate Cancer

Posted: Aug 16 3:07pm

Those monthly Firmagon shots are a pain. Ask your doctor about getting Orgovyx, has the same...

https://connect.mayoclinic.org/comment/1144563/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20 11:23am

I did my quarterly blood work this morning, and had my ultrasensitive PSA result online less...

https://connect.mayoclinic.org/comment/1135456/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Sep 3 9:46am

I concur. I have an aggressive stage 3 and have been taking Orgovyx since May 2022....

https://connect.mayoclinic.org/comment/1156188/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 13 7:02am

In addition to debulking surgery on my spinal metastasis and radiation therapy to my spine and...

https://connect.mayoclinic.org/comment/1141372/

Discussion: Prostate Cancer, Stage 4, spine & pelvis, Eligard, now abiraterone

Support Group: Prostate Cancer

Posted: Sep 14 9:01am

I can't answer that directly, because my hospital's uPSA test goes down only to 0.01 and...

https://connect.mayoclinic.org/comment/1139874/

Discussion: How many of you were < 0.006 on the Labcorp test and then recurred?

Support Group: Prostate Cancer

Posted: Sep 11 11:22am

I'm told recovery depends on a number of factors including age. I'm 72; ended 4 months...

https://connect.mayoclinic.org/comment/1151124/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Oct 3 8:34am

I started on Lupron seven years ago and noticed no fatigue. Switched to Orgovyx about six...

https://connect.mayoclinic.org/comment/1129564/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 23 7:19pm

I’m 70 with stage 2 and will start radiation in a few weeks. I’ve been on...

https://connect.mayoclinic.org/comment/1144438/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 20 9:00am

Just to add a very different experience…In 2008, my internist did a DRE as part of...

https://connect.mayoclinic.org/comment/897389/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 17, 2023

I started Orgovyx 9 days before my first SBRT. At that point my T was already...

https://connect.mayoclinic.org/comment/1042671/

Discussion: 3 Month post SBRT PSA

Support Group: Prostate Cancer

Posted: Mar 30 10:30am

I had Salvage Radiation Treatment w/ short term ADT beginning 6 mos after RP. Aug 2022...

https://connect.mayoclinic.org/comment/1175953/

Discussion: I need advice to help make a decision.......

Support Group: Prostate Cancer

Posted: 4 days ago

In some cases, stopping and starting, the medicine can cause it to be less effective, but...

https://connect.mayoclinic.org/comment/1147112/

Discussion: Orgovyx-Start and Stop Advice

Support Group: Prostate Cancer

Posted: Sep 25 10:37am

Wow I go to MSK also and my experience, other than Dr Mulhall, hasn’t been nearly...

https://connect.mayoclinic.org/comment/1142596/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 16 5:19pm

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