Prostate Cancer Support Group

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Comments (2,470)

A lot of good comes from this site. I am planning intermittent adt. Had Gleason 9...

https://connect.mayoclinic.org/comment/1154262/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Oct 9, 2024

Sounds like we have much the same diagnosis, difference being I'm 71 yrs old. I’m sorry...

https://connect.mayoclinic.org/comment/1133060/

Discussion: 46 year old, two lesions. Pirad4 Pirad3

Support Group: Prostate Cancer

Posted: Aug 29, 2024

That's a hard question to answer. I use a different medication for ADT (previously Firmagon, now...

https://connect.mayoclinic.org/comment/1059923/

Discussion: After IMRT, ultrasensitive PSA result < 0.03

Support Group: Prostate Cancer

Posted: Apr 30, 2024

Your experience is wonderful to hear about. It really offers hope. Can you tell me what...

https://connect.mayoclinic.org/comment/969680/

Discussion: Symptoms of final days of metastatic prostate bone cancer

Support Group: Prostate Cancer

Posted: Nov 24, 2023

I’m on Orgivyx 4 1/2 months. Side effects are almost nil. Seems like better experience than...

https://connect.mayoclinic.org/comment/943521/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 7, 2023

Sounds familiar. 6 months on Orgovix ending in early March.

https://connect.mayoclinic.org/comment/895056/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: Jul 13, 2023

Yes. Grateful, but annoying. Agree, primarily the fatigue or simply less energy. When I walk, after...

https://connect.mayoclinic.org/comment/894689/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: Jul 12, 2023

Rp in 2018. 36 radiation and 3 mos orogovyx in 2021. Psa undetectable until 12/15/22 then...

https://connect.mayoclinic.org/comment/812960/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Feb 17, 2023

Yes. Orgovix

https://connect.mayoclinic.org/comment/754144/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Sep 26, 2022

As a result of psa in the .27 range for last 3 months, all my doctors...

https://connect.mayoclinic.org/comment/610255/

Discussion: How to choose treatment for prostate cancer?

Support Group: Prostate Cancer

Posted: Jun 20, 2021

Orgovyxh affect your hemoglobin is it low as well? Green tea is supposed to help increase...

https://connect.mayoclinic.org/comment/1207859/

Discussion: Did prostate cancer treatment lower your white cell blood count?

Support Group: Prostate Cancer

Posted: Jan 9 6:39pm

My treatment course: 1. Emergency debulking surgery for the spinal lesion (which had compressed my spinal...

https://connect.mayoclinic.org/comment/1289334/

Discussion: Stage 4 metastatic prostate cancer: What's the prognosis?

Support Group: Prostate Cancer

Posted: Apr 25 6:02am

I can only relate my experience. When I was on Lupron from Jan 17-May 18, I...

https://connect.mayoclinic.org/comment/1037551/

Discussion: Reversal of penile shortening after stopping Lupron

Support Group: Prostate Cancer

Posted: Mar 21, 2024

23 months Oorgovyx/abi undetectable psa after 45 days. Taking holiday 2 months now had devised a...

https://connect.mayoclinic.org/comment/1313723/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: May 26 11:04pm

It happens I have it with me here in the coffee shop, because I just refilled...

https://connect.mayoclinic.org/comment/1144723/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20, 2024

When your PSA starts rising after surgery or radiation and has a significant doubling rate, you...

https://connect.mayoclinic.org/comment/1129802/

Discussion: When do you get assigned an oncologist?

Support Group: Prostate Cancer

Posted: Aug 24, 2024

flax: I am also in my 80's. How low your Testosterone went down during the 18...

https://connect.mayoclinic.org/comment/1070874/

Discussion: Second opinion for husband's stage 4A prostate cancer? And update

Support Group: Prostate Cancer

Posted: May 19, 2024

I'm not sure if this is the same site you used. https://www.orgovyx.com/support-and-resources/ It provided me with...

https://connect.mayoclinic.org/comment/947430/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 14, 2023

I would look at the Orgovix or a low dose Lupron shot. Nothing more than 22.5mg(3...

https://connect.mayoclinic.org/comment/850630/

Discussion: PSA - 17.1, are Lupron injections necessary?

Support Group: Prostate Cancer

Posted: Apr 28, 2023

Hey @johno47 I'm following this with interest since I'm in the first part of that sequence...

https://connect.mayoclinic.org/comment/733341/

Discussion: Further Treatment: Wondering about stopping hormone therapy?

Support Group: Prostate Cancer

Posted: Aug 2, 2022

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