Polymyalgia Rheumatica (PMR) Support Group

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Comment

My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...

https://connect.mayoclinic.org/comment/840706/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2023

Comment

@samara66 It was a combination of autoimmune related inflammatory arthritis along with PMR. There was also...

https://connect.mayoclinic.org/comment/838755/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2023

Comment

Wow I hope it was. The Naltrexone has so few side effects compared with prednisone. Frankly...

https://connect.mayoclinic.org/comment/838194/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2023

Comment

The doctor has given me a 6 month tapering schedule with the weekly injections of Actemra....

https://connect.mayoclinic.org/comment/836149/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

Comment

I hated being on prednisone! But, it was the only way to stop the pain and...

https://connect.mayoclinic.org/comment/832610/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2023

Comment

Yes ... I was offered Actemra (tocilizumab) for PMR after "all other treatment alternatives failed." That...

https://connect.mayoclinic.org/comment/825958/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Comment

Hello @lestep, I would like to add my welcome to Connect along with @tillysam and others....

https://connect.mayoclinic.org/comment/825893/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Comment

Spondylitis is like what you describe. It is a progressive type of autoimmune disorder. In the...

https://connect.mayoclinic.org/comment/825576/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

Comment

From my experience with uveitis and other autoimmune problems, I would tend to agree with the...

https://connect.mayoclinic.org/comment/825346/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

Comment

Good paper. There were possible mechanisms discussed for LDN that I was unaware of. My general...

https://connect.mayoclinic.org/comment/822849/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2023

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