Polymyalgia Rheumatica (PMR) Support Group

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Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...

https://connect.mayoclinic.org/comment/896964/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

Comment

Not sure this is correct place to respond. Diagnosed 5/23. Started on 30mg of prednisone and...

https://connect.mayoclinic.org/comment/896069/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

Comment

How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...

https://connect.mayoclinic.org/comment/895854/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Comment

Hi @ vellen….I just noticed that you have fibromyalgia as well as PMR. I’m thinking I...

https://connect.mayoclinic.org/comment/895420/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Comment

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

Comment

You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...

https://connect.mayoclinic.org/comment/891301/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Comment

Hi @johnarbaugh, You will notice that we moved your post to an existing discussion on tapering...

https://connect.mayoclinic.org/comment/891164/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Comment

Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...

https://connect.mayoclinic.org/comment/890554/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2023

Comment

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Comment

Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...

https://connect.mayoclinic.org/comment/889839/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

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