Polymyalgia Rheumatica (PMR): Discussions | Page 91

Yes, it is for me. I wake up with extreme pain in my fingers and wrists...

https://connect.mayoclinic.org/comment/1029377/

Discussion: NEW to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 2:39pm

Hello @deborah57, I would like to add my welcome to Connect along with @nancy53 and others....

https://connect.mayoclinic.org/comment/1028566/

Discussion: NEW to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6 9:02am

So my blood work showed negative for PMR but my symptoms were spot on for it....

https://connect.mayoclinic.org/comment/1030570/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 2:16pm

@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...

https://connect.mayoclinic.org/comment/1030494/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 11:29am

If you can see a Rheumatologist, go. Their knowledge is more specific to PMR as it...

https://connect.mayoclinic.org/comment/1031767/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 11 1:25pm

Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...

https://connect.mayoclinic.org/comment/1032883/

Discussion: Genetic testing to determine drug suitability

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 12:10pm

@slf202mcinfo. I can trace the onset of PMR to the last in the series of Pfizer...

https://connect.mayoclinic.org/comment/1060689/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2 8:05am

@dadcue That is very good to know about Actemra becoming more effective to help tapering after...

https://connect.mayoclinic.org/comment/1062796/

Discussion: Facial puffiness? PMR/GCA on Prednisone/Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5 4:35pm

Until PMR was diagnosed, I had no problem tapering off prednisone … sometimes from 100 mg...

https://connect.mayoclinic.org/comment/1057723/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 12:16pm

@dadcue Could you please confirm that the first time you were on Actemra you were doing...

https://connect.mayoclinic.org/comment/1045219/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4 9:51am

I was at age 54 PMR. Hips shoulders and buttocks pain. Prednisone 10 mg twice a...

https://connect.mayoclinic.org/comment/1047148/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7 10:48pm

Hi, I am wondering what taper schedule you used with your prednisone once the LF started...

https://connect.mayoclinic.org/comment/1035997/

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18 3:25pm

Hi, I started taking LF a month ago with very good results, i.e., reduced shoulder and...

https://connect.mayoclinic.org/comment/1050280/

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 7:48pm

@dadcue Wow!! You have been through it all!! That sounds awful! I will make sure that...

https://connect.mayoclinic.org/comment/1074383/

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 11:14am

You are not alone with having trouble tapering off of prednisone. It can be difficult for...

https://connect.mayoclinic.org/comment/1074367/

Discussion: Where to go for comprehensive evaluation?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 10:48am

My rheumatologist did a bit of a test before starting Actemra. I was asked to taper...

https://connect.mayoclinic.org/comment/1074490/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 2:01pm

I took DEX. for my PMR. My wife has GBM they prescribe dex for inflammation. Its...

https://connect.mayoclinic.org/comment/1077210/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 12:33pm

Many many people were not diagnosed early enough in the course of their disease. I see...

https://connect.mayoclinic.org/comment/1077892/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30 1:16pm

Dadcue, interested in your thoughts with a true PMR flare. By true flare I mean you...

https://connect.mayoclinic.org/comment/1078580/

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 4:52pm

Same for Reactive Arthritis ... Pain was more confined to my lumbar spine but I also...

https://connect.mayoclinic.org/comment/1078472/

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 1:07pm

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