Polymyalgia Rheumatica (PMR) Support Group

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It took over 4 months to diagnose my PMR. I could barely walk. I was so...

https://connect.mayoclinic.org/comment/926258/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

Hi @chzuck, I've had two occurrences of PMR. Starting at 20mg prednisone for both. I always...

https://connect.mayoclinic.org/comment/917535/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 23, 2023

I reluctantly got the high dose shingles vaccine two weeks ago. This was after developing PMR...

https://connect.mayoclinic.org/comment/927413/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10, 2023

Hi, Just to add to the confusion. When I was diagnosed in May 2023 I started...

https://connect.mayoclinic.org/comment/927507/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10, 2023

I don't blame your doctor for being skeptical. https://acrabstracts.org/abstract/glucocorticoid-use-and-adverse-events-in-patients-with-polymyalgia-rheumatica-in-a-contemporary-population-based-cohort/ This study was frequently cited on another...

https://connect.mayoclinic.org/comment/930761/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2023

wilmigtonemperor, after reading a lot of discussions on this site, it is evident that no two...

https://connect.mayoclinic.org/comment/931319/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

I was diagnosed with PMR in May and Dr started me on 20 mg of prednisone...

https://connect.mayoclinic.org/comment/937413/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 27, 2023

Hello @richardab @redboat @tls4 @bfh3 we seem to be in the newly diagnosed group (? Early...

https://connect.mayoclinic.org/comment/874495/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

I think you would have much to contribute to a PMR forum. I don't know where...

https://connect.mayoclinic.org/comment/886677/

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

@emaureen, I think we are all a little impatient when trying to taper off of prednisone....

https://connect.mayoclinic.org/comment/887687/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2023

I was diagnosed back in March with PMR put on prednisone been tapering down from 20...

https://connect.mayoclinic.org/comment/889341/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

Your symptoms do indicate PMR. Prednisone does work in most cases, though not all. PMR has...

https://connect.mayoclinic.org/comment/904766/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

Thanks for your reply! About a month ago I started having fleeting stabbing pains in my...

https://connect.mayoclinic.org/comment/906529/

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

I had a similar situation due to PMR or "apparent" GCA. I was on 20 mg...

https://connect.mayoclinic.org/comment/908048/

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

Latest blood work revealed that i have developed macrocytic anemia (high MCH). Probably explains the fatigue...

https://connect.mayoclinic.org/comment/908837/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2023

@vellen, My rheumatologist gave me tapering suggestions but never told me specific amounts or times to...

https://connect.mayoclinic.org/comment/908236/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

It wasn’t until I went to NJH that my local doctors got in formation and started...

https://connect.mayoclinic.org/comment/909851/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2023

I think the 5.9 years as the "average" duration of PMR came from the following study....

https://connect.mayoclinic.org/comment/910917/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2023

Good Morning Misery3, So glad you found this support group. It is filled with wonderful people...

https://connect.mayoclinic.org/comment/892049/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2023

Hello John and thank you for your welcome! No I have not been diagnosed with Fibromyalgia,...

https://connect.mayoclinic.org/comment/895775/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

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