Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,003)

I contracted PMR after my second COVID vaccination in March 2021 (? coincidence?) I have been...

https://connect.mayoclinic.org/comment/742672/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2022

@hfoster, I've always been told to listen to my body and only taper when I had...

https://connect.mayoclinic.org/comment/741044/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2022

Welcome @polykendancer, I am fortunate that my primary care doctor got me a referral to a...

https://connect.mayoclinic.org/comment/739239/

Discussion: PMR and Sciatica with Back Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2022

@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside....

https://connect.mayoclinic.org/comment/738974/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

Great questions @elizabethjoan. I think we are each different. I had similar episodes during my first...

https://connect.mayoclinic.org/comment/738383/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2022

Hi, tillysam, You are correct. Your CRP and ESR don't necessarily have to be elevated for...

https://connect.mayoclinic.org/comment/736401/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2022

@njtodctode Oh my gosh!! Yo-yoing is not good. Pain is not good. If 20 worked, I'd...

https://connect.mayoclinic.org/comment/736284/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2022

Hello @njtodctode, Welcome to Connect. It does sound like your rheumatologist is right about it being...

https://connect.mayoclinic.org/comment/735802/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2022

My husband has his first total knee replacement next week. He is currently taking 2 mg...

https://connect.mayoclinic.org/comment/735518/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2022

Welcome @elizabethjoan, It can be confusing trying to treat your PMR symptoms. You will notice that...

https://connect.mayoclinic.org/comment/735458/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2022

When I started to feel better, my Rheumatologist told me to taper slowly. 1/2 mg. Every...

https://connect.mayoclinic.org/comment/733340/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2022

My husband had to go to 24mg of methyl prednisolone (stronger form of prednisone) before he...

https://connect.mayoclinic.org/comment/733263/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2022

Hello @flymetothemoon, Welcome to Connect. I saw in your first post that you have been dealing...

https://connect.mayoclinic.org/comment/732642/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2022

I'm sorry to say Rheumies, in general, seem to go for the fast taper, which does...

https://connect.mayoclinic.org/comment/732641/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2022

@macferse I'm wondering what dosage you are on. I think it does get better as you...

https://connect.mayoclinic.org/comment/732169/

Discussion: Timing of tapering in relation to easing of side effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 29, 2022

I have had PMR for 1 year. I started on 20 mg of prednisone and have...

https://connect.mayoclinic.org/comment/731285/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2022

My rheumy is upset that I'm not below 10 mg by now and brought up "steroid-sparing...

https://connect.mayoclinic.org/comment/730493/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2022

I have been on Actemra for 7 weeks. I started Actemra with an accompanying dose of...

https://connect.mayoclinic.org/comment/728244/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2022

PMR can be frustrating. I don't think anyone likes taking the prednisone but if you have...

https://connect.mayoclinic.org/comment/728036/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2022

Welcome @olliviv, It sounds like you already have a head start and a great mindset for...

https://connect.mayoclinic.org/comment/723896/

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2022

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