Polymyalgia Rheumatica (PMR) Support Group

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Hi Carley, I am truly sorry to hear about your pain…. My diagnosis was basically the...

https://connect.mayoclinic.org/comment/102137/

Discussion: Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2018

@rearea1 - From Tinkerbell - I am just off 1 1/2 years of Prednisone. Hopefully the...

https://connect.mayoclinic.org/comment/137819/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 28, 2018

Hello @rachelp, welcome to Connect. I have had 2 occurrences of PMR. The first lasted 3...

https://connect.mayoclinic.org/comment/225690/

Discussion: PMR or Steroid Myopathy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 10, 2018

Hi @evelyn123, welcome to Connect. I also have PMR but it is currently in remission. It's...

https://connect.mayoclinic.org/comment/137748/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 10, 2018

Hello @paulamhp -- Welcome to Connect. I also have PMR but it's now in remission. I...

https://connect.mayoclinic.org/comment/137728/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2018

From my personal experience with PMR, no 6 day dose would get rid of it. First...

https://connect.mayoclinic.org/comment/940737/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

So far, I am unaware of any side effects of Actemra. I've been having weekly injections...

https://connect.mayoclinic.org/comment/882776/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

@paulagcl and. @dadcue -- Please look at the slides in PMRandIl6.com - https://www.pmrandil6.com/resources/. scroll down to...

https://connect.mayoclinic.org/comment/889124/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

I am also waiting to start Kevzara if I can’t get tapered off of Predisone. I’ve...

https://connect.mayoclinic.org/comment/943071/

Discussion: PMR Flair up From a Virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

I am on Kevzara, too, starting in April, soon after I was diagnosed and started on...

https://connect.mayoclinic.org/comment/942720/

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

Welcome @mountainbikergirl, That's a good question but I'm not sure there is a clear answer. I...

https://connect.mayoclinic.org/comment/942930/

Discussion: How many of you are on your second flare-up?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

Hello @edinnola, Welcome to Connect. I'm really sorry to hear that you've joined the PMR club....

https://connect.mayoclinic.org/comment/933847/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

I believe you will get better eventually. For me PmR came on fast and hard. It...

https://connect.mayoclinic.org/comment/945000/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2023

Thanks Bradninchgirl! Coming down by 2.5 mg at a time was definitely too much for me....

https://connect.mayoclinic.org/comment/946554/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

Thanks but so far I still haven’t felt much better. I know something is wrong but...

https://connect.mayoclinic.org/comment/738698/

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

Ugh! that is what I was afraid of, making it worse, and causing a longer time...

https://connect.mayoclinic.org/comment/932975/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2023

I had scalp tenderness, mild jaw pain, but no vision issues. I was already on prednisone...

https://connect.mayoclinic.org/comment/931582/

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

@vellen, I thought I would share a direct link to the discussion you found helpful so...

https://connect.mayoclinic.org/comment/884650/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

My last two attempts at tapering when below 5 mg ignited a swollen painful hands response....

https://connect.mayoclinic.org/comment/934148/

Discussion: Swollen hands, rash with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

Kevzara (sarilumab) is FDA approved for PMR Actemra (tocilizumab) is FDA approved for GCA Both of...

https://connect.mayoclinic.org/comment/924479/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

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