Polymyalgia Rheumatica (PMR) Support Group

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When I was diagnosed with PMR in 2020 I was put on prednisone and my blood...

https://connect.mayoclinic.org/comment/895883/

Discussion: Diabetes and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

I can understand why an endocrinologist has a different opinion than a rheumatologist regarding 5 mg...

https://connect.mayoclinic.org/comment/895124/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2023

I agree... My dad's rheumatologist said we need to "listen to his body," and not what...

https://connect.mayoclinic.org/comment/894476/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2023

Doctor wants me to stay on this 12.5 daily dose of Prednisone for two more weeks...

https://connect.mayoclinic.org/comment/894049/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2023

I never had a big problem with bruising and thin skin while on prednisone. I did...

https://connect.mayoclinic.org/comment/891329/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Hi Kurt @kurt25, I would like to add my welcome to Connect along with @emo, @vellen,...

https://connect.mayoclinic.org/comment/890028/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

I know that it’s scary, and I worry about side effects to medication too, but I...

https://connect.mayoclinic.org/comment/890027/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

I started at 10, suggested for one week, then to 5mgs. However, after 4 days I...

https://connect.mayoclinic.org/comment/889997/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Uveitis doses prescribed by my ophthalmologist usually took 60 mg to 100 mg to start with...

https://connect.mayoclinic.org/comment/889702/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

How are you doing with Actemra? I think you were lucky to start Actemra as quickly...

https://connect.mayoclinic.org/comment/888331/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023

Absolutely get another opinion or better yet, another doctor. The fact that the prednisone worked so...

https://connect.mayoclinic.org/comment/888150/

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023

After 15 months of prednisone/Medrol tapers I have failed both trials. Rheumatology recommending Kevzara (FDA approved...

https://connect.mayoclinic.org/comment/886720/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

In 2010 I started prednisone 10mg after PMR was diagnosed by exclusion of other arthritic type...

https://connect.mayoclinic.org/comment/886084/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2023

Hi again- Echoing the others here and sending support. We worked with my dad’s rheumatologist on...

https://connect.mayoclinic.org/comment/884834/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

FYI, for those needing more information and/or experiences tapering, I found a helpful thread from 2017...

https://connect.mayoclinic.org/comment/884640/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

Hi Ripley….My initial symptom in March was bilateral upper arm, hip and thigh pain. My labs...

https://connect.mayoclinic.org/comment/883736/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2023

Just took my first dose of Kevzara two days ago. Diagnosed in January 2023, on 15...

https://connect.mayoclinic.org/comment/883244/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

Hi @ripley, I had PMR undiagnosed for a year because I thought it was fibromyalgia. I...

https://connect.mayoclinic.org/comment/883190/

Discussion: Any difficulty in diagnosis of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

I hope that you get the care that you need very soon! I'm just 52 and...

https://connect.mayoclinic.org/comment/882458/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21, 2023

Hi, I am newly diagnosed with PMR and these were my symptoms. At first I experienced...

https://connect.mayoclinic.org/comment/882418/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21, 2023

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