Polymyalgia Rheumatica (PMR) Support Group

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Hello, you seem to be doing remarkably well considering you were diagnosed in June. I was...

https://connect.mayoclinic.org/comment/777638/

Discussion: PMR questions about prednisone, surgery limitations, pain and more

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2022

My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...

https://connect.mayoclinic.org/comment/831351/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

I would ask your doctor how long will he/she want you to take prednisone? When their...

https://connect.mayoclinic.org/comment/831058/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

I know that is what I was thinking ! Everything I read !! Scary ! I...

https://connect.mayoclinic.org/comment/829414/

Discussion: Prednisone Taper from 40 mg to 7.5 in one day ‘

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

Greetings @saltyg I hope the combination of Embrel and prednisone is working for you. AS and...

https://connect.mayoclinic.org/comment/826632/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Hi @abbeyc The biologic I'm currently on is called Actemra (tocilizumab). It has been FDA approved...

https://connect.mayoclinic.org/comment/826631/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Wow, reading your tapering off situation. It’s also very confusing. I was diagnosed with PMR and...

https://connect.mayoclinic.org/comment/826320/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Thanks. 60 mg of prednisone is mostly stopping my pain, and my last blood test showed...

https://connect.mayoclinic.org/comment/825886/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Do you still take Actemra for PMR? Have you been able to stay in remission when...

https://connect.mayoclinic.org/comment/824157/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I am 4 months into prednisone and one week into LDN. It is too early to...

https://connect.mayoclinic.org/comment/823794/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I have been on 15mg of Prednisone since July for PMR. I get my health care...

https://connect.mayoclinic.org/comment/821074/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2023

Thank you, thank you, thank you. This is so helpful. Just from a logical viewpoint, tapering...

https://connect.mayoclinic.org/comment/818865/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

What a range of experiences we have all had with PMR, and it is distressing to...

https://connect.mayoclinic.org/comment/815524/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22, 2023

I was diagnosed with Pmr in July 2019, per high crp and sed rates. It took...

https://connect.mayoclinic.org/comment/815093/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2023

We should compare notes sometime. My uveitis was "steroid responsive." It was also called "severe" and...

https://connect.mayoclinic.org/comment/812461/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2023

Hi, I am wanting to taper off my prednisone. I will do it under a Drs...

https://connect.mayoclinic.org/comment/811682/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

Thank you for posting your story! You are absolutely right about possibilities of other ailments that...

https://connect.mayoclinic.org/comment/810239/

Discussion: Strange story: Watch for changes in your condition, keep an open mind

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2023

I am in the process of tapering and am a bit concerned about my last phase...

https://connect.mayoclinic.org/comment/807262/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

I'm in agreement with tillysam. You don't say how much Prednisone you are taking or how...

https://connect.mayoclinic.org/comment/807253/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

I will be speaking with my PCP about this next week. I'm wondering if it would...

https://connect.mayoclinic.org/comment/807247/

Discussion: Anyone have experience with Low Dose Naltrexone instead of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

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