Polymyalgia Rheumatica (PMR) Support Group

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Welcome @321design, That does seem to be the magic and elusive question when diagnosed with PMR...

https://connect.mayoclinic.org/comment/1053858/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2024

"basically wean down until you get sick, increase when you get sick" That sums it up...

https://connect.mayoclinic.org/comment/1053264/

Discussion: Factors that encourage the body to begin producing cortisol again

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

Thank you! I’ve been off prednisone for 7 weeks after tapering for 13 months. Every day...

https://connect.mayoclinic.org/comment/1053057/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

Hi @dadcue and everyone really- Thanks so much for the detailed replies and resources. Sorry to...

https://connect.mayoclinic.org/comment/1052116/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

Good morning @besmith57 - I'd like to tell you about my PMR-friend who just returned from...

https://connect.mayoclinic.org/comment/1049449/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2024

I got euphoria on 20mg and was wondering why I never heard of this drug. Of...

https://connect.mayoclinic.org/comment/1049207/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

I was diagnosed with GCA last July. It was very scary, I was hospitalized for 5...

https://connect.mayoclinic.org/comment/1048891/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

Thank-you for posting this reference. I will add it to my file. The highlighted paragraphs in...

https://connect.mayoclinic.org/comment/1048489/

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

Most people seem to gain weight on high dose prednisone. He's lost weight. He's leveled out...

https://connect.mayoclinic.org/comment/1048394/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

@dadcue Thank you for sharing your experiences with prednisone and Actemra. It was very helpful. I...

https://connect.mayoclinic.org/comment/1045212/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

I was on moderately high doses of prednisone for 12 years ... in the 20-40 mg...

https://connect.mayoclinic.org/comment/1044991/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

I am finally off of Prednisone after 2 years! I still have manageable pain -probably aches...

https://connect.mayoclinic.org/comment/1044946/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

Thx for this John. I have been keeping a log of pain levels since tapering to...

https://connect.mayoclinic.org/comment/1043172/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2024

I started Kevzara Dec 16th for PMR prednisone tapering. I quit March 1st due to side...

https://connect.mayoclinic.org/comment/1043056/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2024

Welcome @joaniem5, I'm sorry to hear that you have joined the PMR club but you have...

https://connect.mayoclinic.org/comment/1042600/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

I am so glad that you decided go with Kevzara. I am off of Kevzara since...

https://connect.mayoclinic.org/comment/1040983/

Discussion: How long does it take for you to move without pain and stiffness in a.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

Thank you for these insightful comments. I basically diagnosed myself (I'm a somatic educator with 30...

https://connect.mayoclinic.org/comment/1040383/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

I agree! I started doing Yoga every day during the Covid lockdown and attribute my practice...

https://connect.mayoclinic.org/comment/1037558/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2024

Starting in October, initially on P20, my dose had to be adjusted to P30 to tame...

https://connect.mayoclinic.org/comment/1036438/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2024

Welcome @gsm1, Those 1 mg prednisone tablets do help for tapering in smaller amounts. It sounds...

https://connect.mayoclinic.org/comment/1035286/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

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