Polymyalgia Rheumatica (PMR) Support Group

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I just saw these webinars on the PMRGCAUK website and thought they might be helpful. --...

https://connect.mayoclinic.org/comment/1092242/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

@yeb I don't think you are alone in your struggle to get off of prednisone when...

https://connect.mayoclinic.org/comment/1091887/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2024

I guess that question has me wondering. I have thought all along that the biologics were...

https://connect.mayoclinic.org/comment/1090732/

Discussion: After remission ... has anyone discontinued Actemra or Kevzara?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2024

It sounds like you might be tapering too fast. 2.5 mg is a big drop. I...

https://connect.mayoclinic.org/comment/1090473/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2024

You got this. I agree with Linda. You have been on prednisone for 2 years so...

https://connect.mayoclinic.org/comment/1087221/

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2024

Hello I am an English male 76 and resident in France, I was diagnosed with PMR...

https://connect.mayoclinic.org/comment/1084803/

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

@jlo22 My experience with Prednisone combined with any other immunosuppressant medication was characterized by infections. My...

https://connect.mayoclinic.org/comment/1084766/

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

I certainly understand how you feel. The real debate about the pros and cons of Prednisone...

https://connect.mayoclinic.org/comment/1084322/

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024

A very good article in UpToDate.com stated that hands and wrists are often involved, suddenly and...

https://connect.mayoclinic.org/comment/1083404/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9, 2024

I think there are many possibilities including a low cortisol level that might explain pain on...

https://connect.mayoclinic.org/comment/1080777/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

I do feel better but have only been on Kevzara for 2 weeks. My rheumatologist said...

https://connect.mayoclinic.org/comment/1080667/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

This is very helpful thank you and after nearly 2 years it is the conclusion I...

https://connect.mayoclinic.org/comment/1080434/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

My rheumatologist sends a very detailed letter to my PCP after every visit. My hand problem...

https://connect.mayoclinic.org/comment/1080257/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

Hi I started on 20mg of prednisone for PMR 4 years ago. Had difficulty tapering down...

https://connect.mayoclinic.org/comment/1079807/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

These social media sites are more to help exchange information. What we all have found is...

https://connect.mayoclinic.org/comment/1079704/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I am on dexamethsone now and stopped regular prednisone and will try to taper down Need...

https://connect.mayoclinic.org/comment/1079446/

Discussion: What mg of prednisone to take when a person gets a flare up?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I haven’t weighed in for a while. I am over a year with PMR and tapering...

https://connect.mayoclinic.org/comment/1079415/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

When I tapered to about 7, I started having mild wrist/finger/thumb pains in the AM. The...

https://connect.mayoclinic.org/comment/1079372/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I took prednisone for about six months for PMR, (my blood test for PMR was 69.9!...

https://connect.mayoclinic.org/comment/1078810/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

No PMR symptoms since Actemra was started on January 1st, 2019. I still do a monthly...

https://connect.mayoclinic.org/comment/1078648/

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2024

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