Polymyalgia Rheumatica (PMR) Support Group

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Hi@lisabrookside387. I'm sorry you're in such pain. I was diagnosed with Giant Cell Arteritis in May...

https://connect.mayoclinic.org/comment/637334/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2021

It was impossible for me to exercise. I finally felt stable enough (started 10 mg Prednisone...

https://connect.mayoclinic.org/comment/635065/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2021

I’ve been wondering about when to get and if to get my third shot. I started...

https://connect.mayoclinic.org/comment/631449/

Discussion: COVID Booster, Prednisone and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2021

There is no science in tapering off prednisone - only suggestions. If it was known how...

https://connect.mayoclinic.org/comment/630589/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2021

Hi @fillis, Welcome to Connect, an online community where patients and caregivers share their experiences, find...

https://connect.mayoclinic.org/comment/629679/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2021

Are you able to get the 1 mg prednisone tablets and then go down by 1...

https://connect.mayoclinic.org/comment/628975/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 22, 2021

Hi Alan, yes prednisone does suppress the immune system, even at a low dose. It takes...

https://connect.mayoclinic.org/comment/626259/

Discussion: Does Prednisone weakened your immune system while being used for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2021

@ncgal - It sounds like you are doing good tapering off of the prednisone. I'm also...

https://connect.mayoclinic.org/comment/625604/

Discussion: PMR - Prednisone and random itching patches of skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2021

Suzorand, your welcome. FYI, I took twice as long to taper off Prednisone than what the...

https://connect.mayoclinic.org/comment/620940/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2021

@suzorand - Another thing that might help PMR if you are not already doing it is...

https://connect.mayoclinic.org/comment/620532/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2021

I'm on 20 mg. Prednisone (tapered down from 40 mg. for GCA). I had a dexascan...

https://connect.mayoclinic.org/comment/619457/

Discussion: Pain flare after Dexascan 15 min flat on back

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2021

I'm sorry you have PMR at such a young age. I have just recovered from my...

https://connect.mayoclinic.org/comment/617618/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2021

That's a great idea for the Exercise Group. Walking when manageable is always good and it's...

https://connect.mayoclinic.org/comment/617164/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2021

unfortunately in the age group susceptible to PMR there is overlap with other ailments such as...

https://connect.mayoclinic.org/comment/615254/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2021

I don't use any OTC meds. I do believe that I read someplace not to use...

https://connect.mayoclinic.org/comment/612826/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2021

Yes, being on prednisone and trying to taper off can be pretty awful. You just have...

https://connect.mayoclinic.org/comment/604530/

Discussion: Ongoing pain with normal CRP and ESR - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2021

I have had PMR for more than a year and a half. It took ~ 6...

https://connect.mayoclinic.org/comment/604113/

Discussion: Prednisone and osteopenia how to control

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2021

Hello @marilyncarkner, It's good to be down to 8 mg on tapering off of prednisone. Have...

https://connect.mayoclinic.org/comment/602036/

Discussion: Prednisone tapering is hard: Do complementary therapies help?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2021

My problem with PMR when it was active is that without prednisone there was no relief....

https://connect.mayoclinic.org/comment/601247/

Discussion: Terry Wahls Protocol

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2021

Thanks for your answer. She has me on a tapered schedule. I was doing pretty well...

https://connect.mayoclinic.org/comment/597614/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2021

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