Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,994)

There is no gold standard for tapering off prednisone. This video gives reasonable "guidelines" to follow....

https://connect.mayoclinic.org/comment/999614/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2024

I have had to bump back up on prednisone a few times and taper slower (reduction...

https://connect.mayoclinic.org/comment/997008/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14, 2024

Hello. Sorry you're going thru the muscle weakness. The worst pain that I experience now since...

https://connect.mayoclinic.org/comment/994301/

Discussion: PMR and Head Drop

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9, 2024

Was diagnosed with PMR October of 2016 hospitalized was so very sick felt like I was...

https://connect.mayoclinic.org/comment/993628/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8, 2024

Hello @grandpa4, Welcome to Connect. A lot of us PMR old timers can relate to your...

https://connect.mayoclinic.org/comment/992313/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6, 2024

Hi, I wish I could answer your question, but tapering seems to be such an individual...

https://connect.mayoclinic.org/comment/991944/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5, 2024

Going off prednisone without properly tapering down (titrating) can cause your body to have serious reactions...

https://connect.mayoclinic.org/comment/990965/

Discussion: Should you take your Predisone when you have the flu

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3, 2024

Are you referring to a cytokine storm? Anything is possible which is why a complete health...

https://connect.mayoclinic.org/comment/990552/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2024

@obxpoppop Good morning -- As @dadcue just said , the best we can do is relate...

https://connect.mayoclinic.org/comment/989178/

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2023

@nancy53 greetings ! I don't recall a single person on this forum , where i have...

https://connect.mayoclinic.org/comment/988765/

Discussion: PMR - possible diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2023

I am new to this chat room I was diagnosed w PMR one year ago underwent...

https://connect.mayoclinic.org/comment/988432/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

Onset was a huge, inflammatory flare that came out of the blue. At first I thought...

https://connect.mayoclinic.org/comment/988296/

Discussion: PMR - possible diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

@cpd54, @johnbishop, and all...I'm amazed at the activities some of you can continue even with PMR...

https://connect.mayoclinic.org/comment/983974/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2023

I would applaud you too. It is better to taper off prednisone as soon as you...

https://connect.mayoclinic.org/comment/983317/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 19, 2023

@john In a lot of pain today. Tapering down to 6.5 but upped it to 7...

https://connect.mayoclinic.org/comment/980479/

Discussion: Question about PMR pain locations

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

I don’t know if that was the cause of the flair but my rheumatologist wants me...

https://connect.mayoclinic.org/comment/980006/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

I have been tapering from 20mg since my initial diagnosis in July. I have just dropped...

https://connect.mayoclinic.org/comment/979965/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

@vanns, @charlotte61, @johnbishop, and all... I've been on varying lengths and dosages of prednisone since I...

https://connect.mayoclinic.org/comment/979626/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

@johnbishop and all...Well, POOH! I took the last Prednisone yesterday. Tapered and began increased pain for...

https://connect.mayoclinic.org/comment/979516/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

Hi Elizabeth @ess77, There are a couple of other discussions you might find helpful if you...

https://connect.mayoclinic.org/comment/979257/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

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