Pancreatic Cancer Support Group

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More answers might start to roll in after dark. I'm not a doctor, so I'm hesitant...

https://connect.mayoclinic.org/comment/854439/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 4, 2023

Comment

@pattyclaire , The two genetic tests I'm aware of are 1) Invitae, which detects "germline" mutations...

https://connect.mayoclinic.org/comment/863923/

Discussion: Anyone have/had BD-IPMN?

Support Group: Pancreatic Cancer

Posted: May 21, 2023

Comment

The decrease in CA19-9 likely decreased as a result of the clearance of the blockage that...

https://connect.mayoclinic.org/comment/936969/

Discussion: Why CA-19-9 Test not included in annual lab tests

Support Group: Pancreatic Cancer

Posted: Sep 26, 2023

Comment

Thank you for all the info. MSK felt the new spot on my liver is too...

https://connect.mayoclinic.org/comment/953960/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 26, 2023

Comment

If your CA19-9 is climbing, there is likely something going on. A scan may be able...

https://connect.mayoclinic.org/comment/949041/

Discussion: Dilaudid for pancreatic attacks.

Support Group: Pancreatic Cancer

Posted: Oct 17, 2023

Comment

I couldn't tell you if it meets the legal criteria for malpractice, but in 20/20 hindsight,...

https://connect.mayoclinic.org/comment/931070/

Discussion: Dilation on pancreas- what should have been done?

Support Group: Pancreatic Cancer

Posted: Sep 16, 2023

Comment

Woohoo! Congrats again, and thank you so much for sharing. I'm surprised they switched the chemo...

https://connect.mayoclinic.org/comment/941088/

Discussion: Has anyone left a dead tumor in?

Support Group: Pancreatic Cancer

Posted: Oct 3, 2023

Comment

Thank you. I know there are so many variables to the CA19-9, but seeing a jump...

https://connect.mayoclinic.org/comment/922906/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Sep 2, 2023

Comment

Post-Whipple and w/o treatment, my CA19-9 went from 12 to 33 to 77 to 277 (at...

https://connect.mayoclinic.org/comment/959013/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2023

Comment

It's somewhat academic, but you might be interested to know and document exactly where they staged...

https://connect.mayoclinic.org/comment/961010/

Discussion: Seeking input re: questions to ask my oncologist 5 weeks post-Whipple

Support Group: Pancreatic Cancer

Posted: Nov 8, 2023

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