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Ostomy & J-Pouch Support Group

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Discussions (26)
J-pouch support: Want to connect with others living with a J-pouch
Is there a possibility of starting a Jpouch group for Crohns/UC? Some of the things we eat, our treatments, our pouch storage, testing, etc, are...
Support Group: Ostomy & J-Pouch
Last active: Nov 26, 2025
J-pouch leakage at night only: What helps to control it?
I have had a jpouch since 1996, basically in remission since. I have had a couple hiccups - bartholyn cyst, recto-vaginal fistula but no hospitalizations...
Support Group: Ostomy & J-Pouch
Last active: Dec 8, 2025
on coloplast pouches
I received a text today from the nurse who did my home health care She was at a coloplast workshop and told me not to...
Support Group: Ostomy & J-Pouch
Last active: Jul 12, 2024
Solving Leaking Pouch Problem
I use a Hollister 82711 pouch, a Coloplast Barrier Ring and Coloplast Barrier Skin Spray. I started to have problems with leakage at the bottom...
Support Group: Ostomy & J-Pouch
Last active: Jan 22, 2025
J-pouch Removal?
Hi all, with a diagnosis of aggressive ulcerative colitis, I had a colectomy and an ileoanal anastomosis surgery (j-pouch) in 1983. Over the years I...
Support Group: Ostomy & J-Pouch
Last active: Sep 7, 2024
Questions about managing a Stoma Pouch
During the past several months I've had an indwelling Foley catheter and leg bag....Apparently external stoma pouches have to be frequently drained, every 2-4 hours...
Support Group: Ostomy & J-Pouch
Last active: Nov 16, 2024
J-Pouch and adenomatous polyps
I've had a J-Pouch since 2004. Recently found out that the most recent polyps biopsied tested positive for adenomatous. My father passed away from FAP...
Support Group: Ostomy & J-Pouch
Last active: Jan 8, 2025
Any thoughts on using a system with Pouch liners?
I have ileostomy and use Convetec Natura, which I really like, no issues at all. I recently saw an add for a pouch liner, described...
Support Group: Ostomy & J-Pouch
Last active: Feb 1, 2025
Kock Pouch with pre-diabetes: Anyone tips on lowering A1c?
Hi Everone! I’ve had a Kock Pouch for 47 years and am now pre-diabetic. Anyone tips on lowering A1c? AI is giving conflicting answers on...
Support Group: Ostomy & J-Pouch
Last active: Dec 15, 2025
Has anyone using ostomy pouches experienced rashes and itching?
Has anyone using ostomy pouches experienced rashes and itching? If so, any suggestions? Allergy pill seems to help except for the redness.
Support Group: Ostomy & J-Pouch
Last active: Dec 26, 2024
I have to choose between Indiana vs. Ileal pouch surgery
I have serious radiation cystitis in my bladder and have to make a decision between having an Indiana procedure (bladder removal with a stoma and...
Support Group: Ostomy & J-Pouch
Last active: Nov 6, 2021
Best way to clean around an ilostomy stoma
I have been using Origins Checks and Balances. It is intended to be a face wash. It is easy to rinse off and leaves the...
Support Group: Ostomy & J-Pouch
Last active: 1 day ago
Has anyone on this group gotten a Sacral Nerve Stimulation implanted?
I have been dealing with night time incontinence for the past 2 years, it started randomly. It is only while asleep, I tend to get...
Support Group: Ostomy & J-Pouch
Last active: 5 days ago
The base of stoma covered by wafer: Remedy?
I changed my pouch today. I think the wafer is covering the base of my stoma. Will this be a problem?
Support Group: Ostomy & J-Pouch
Last active: May 20, 2024
Has anyone taken Entyvio for pouchitis?
Have J-pouch and now with pouchitis. Finished chemo for lymphoma last summer. What is your experience with entyvio?
Support Group: Digestive Health
Last active: Jul 1, 2025
Urostomy equipment question
I use Hollister urostomy pouch 8414 and for overnight I use Bard Urinary Drainage Bag. My supplier Edgepark informs me that the Urostomy drain tube...
Support Group: Ostomy & J-Pouch
Last active: Oct 30, 2025
Leaky appliance after sex
Does anyone else have problems with it leaking/failing after sex? I empty right before and fold it up into Coloplast pouch during but usually within...
Support Group: Ostomy & J-Pouch
Last active: Apr 12, 2024
Anyone with radiation enteritis? Currently on elemental liquid diet
Forty three years ago I had radiation following a complete hysterectomy. Then, 18 years ago I had my colon removed and added J-Pouch. Have had...
Support Group: Ostomy & J-Pouch
Last active: Dec 8, 2025
Swimming Melted the Brava ostomy protective seal
I went swimming in a chlorinated pool for the first time. The next day saw my protective seal was melted in my pouch. Has anyone...
Support Group: Ostomy & J-Pouch
Last active: Jan 21, 2024
Ileostomy output
What is normal output from an ileostomy? I need to empty my pouch 6-8 times a day. In addition, I need to open an Ez-vent...
Support Group: Ostomy & J-Pouch
Last active: Oct 13, 2025