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Ostomy & J-Pouch Support Group

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Discussions (42)
JPouch: Anyone have experience with statins changing the output?
25 yrs with JPouch and I have recently started taking a statin for high cholesterol and this has made my output more frequent and urgent....
Support Group: Ostomy & J-Pouch
Last active: Sep 29 5:53pm
J-pouch support: Want to connect with others living with a J-pouch
Is there a possibility of starting a Jpouch group for Crohns/UC? Some of the things we eat, our treatments, our pouch storage, testing, etc, are...
Support Group: Ostomy & J-Pouch
Last active: Feb 15 9:01pm
J-pouch leakage at night only: What helps to control it?
I have had a jpouch since 1996, basically in remission since. I have had a couple hiccups - bartholyn cyst, recto-vaginal fistula but no hospitalizations...
Support Group: Ostomy & J-Pouch
Last active: Jun 7 8:43pm
Draining My Pouch
I have tried using the deodorizer solution as well as oil and I’m still having a problem with a backup above my stoma. Right now...
Support Group: Ostomy & J-Pouch
Last active: Sep 20 7:45pm
J Pouch Issues: Anyone have problems due to aging of the pouch?
I had a colectomy in 2000 with a temporary ostomy and then a J Pouch placement. I love the freedom of it. For the most...
Support Group: Ostomy & J-Pouch
Last active: Aug 31 5:44pm
on coloplast pouches
I received a text today from the nurse who did my home health care She was at a coloplast workshop and told me not to...
Support Group: Ostomy & J-Pouch
Last active: Jul 12, 2024
J-Pouch or Proctectomy
Good morning! I am currently weighing the decision between a J-Pouch and a Proctectomy. I was diagnosed with Ulcerative Colitis in my rectum only in...
Support Group: Ostomy & J-Pouch
Last active: Apr 26 7:54pm
J-pouch Removal?
Hi all, with a diagnosis of aggressive ulcerative colitis, I had a colectomy and an ileoanal anastomosis surgery (j-pouch) in 1983. Over the years I...
Support Group: Ostomy & J-Pouch
Last active: Apr 10 2:27pm
Ibuprofen and a J-pouch
Has anyone been told not to take Ibuprofen with a J-Pouch? At my last Pouch scope, I was told to avoid ibuprofen completely and use...
Support Group: Ostomy & J-Pouch
Last active: May 30 7:13am
Solving Leaking Pouch Problem
I use a Hollister 82711 pouch, a Coloplast Barrier Ring and Coloplast Barrier Skin Spray. I started to have problems with leakage at the bottom...
Support Group: Ostomy & J-Pouch
Last active: Jan 22, 2025
J-Pouch and adenomatous polyps
I've had a J-Pouch since 2004. Recently found out that the most recent polyps biopsied tested positive for adenomatous. My father passed away from FAP...
Support Group: Ostomy & J-Pouch
Last active: Jan 8, 2025
Questions about managing a Stoma Pouch
During the past several months I've had an indwelling Foley catheter and leg bag....Apparently external stoma pouches have to be frequently drained, every 2-4 hours...
Support Group: Ostomy & J-Pouch
Last active: Nov 16, 2024
Has anyone had the pouch removed because of complications?
I have gotten sick recently after being exposed to heavy metal at work and now my w pouch and small intestine hurt all the time...
Support Group: Ostomy & J-Pouch
Last active: Apr 26 6:17pm
Frequent bathroom use with a pouch: What happens as I age?
I am age 64 with a pouch. I use the bathroom about 20 times a day. What will happen when I am too old to...
Support Group: Ostomy & J-Pouch
Last active: May 1 7:22am
Anyone had an anastomotic stricture at J pouch connection?
I have a J Pouch for 20 years I had to have a small section at the cuff removed and had the J Pouch reconnected....
Support Group: Ostomy & J-Pouch
Last active: Apr 24 7:36am
Ileostomy pouch collects a lot of gas: Any tips to help?
I have to vent my ileostomy pouch several times a day. Bedtime is especially troublesome. I empty my pouch before bed, but I have to...
Support Group: Ostomy & J-Pouch
Last active: Aug 31 8:47am
Ulcerative Colitis total Colectomy with Ileal J pouch
I had a total Colectomy with an Ileal anal J pouch back in 1990 and have dealt with it all these years. But now having...
Support Group: Ostomy & J-Pouch
Last active: Jun 18 7:21pm
Any thoughts on using a system with Pouch liners?
I have ileostomy and use Convetec Natura, which I really like, no issues at all. I recently saw an add for a pouch liner, described...
Support Group: Ostomy & J-Pouch
Last active: Feb 1, 2025
Anyone had a J-pouch revision after it was out of place?
My J Pouch is laying horizontal which causes tie ups, which I have been having for years. My original surgeon never saw a problem on...
Support Group: Ostomy & J-Pouch
Last active: Mar 31 8:56pm
Has anyone using ostomy pouches experienced rashes and itching?
Has anyone using ostomy pouches experienced rashes and itching? If so, any suggestions? Allergy pill seems to help except for the redness.
Support Group: Ostomy & J-Pouch
Last active: Dec 26, 2024