Osteoporosis & Bone Health Support Group

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Comments (1,702)

I recently ended two years of Temlos and have th e results of the DEX scan,...

https://connect.mayoclinic.org/comment/1230972/

Discussion: Protocol after Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Feb 6 4:15pm

I recently started Tymlos after a fractured L5. I was originally diagnosed with osteoporosis in Feb...

https://connect.mayoclinic.org/comment/1219906/

Discussion: Starting Tymlos..

Support Group: Osteoporosis & Bone Health

Posted: Jan 23 3:31pm

@daisypuffmom I have never heard of Evenity causing bone cancer, and cannot find any reference to...

https://connect.mayoclinic.org/comment/1215322/

Discussion: Evenity Contraindications for Cardiac Issues

Support Group: Osteoporosis & Bone Health

Posted: Jan 18 6:14am

I also have questions about side effects. I had my first dose of TyMLOS last night....

https://connect.mayoclinic.org/comment/1224680/

Discussion: Tymlos side effects

Support Group: Osteoporosis & Bone Health

Posted: Jan 29 11:39am

Hi@beanieone, and thanks for your reply to me. Glad to hear the nausea stopped after you...

https://connect.mayoclinic.org/comment/1224764/

Discussion: Back on Evenity via Infusion Center in Hospital

Support Group: Osteoporosis & Bone Health

Posted: Jan 29 1:04pm

Zofran should not be used for long, according to my doc. I had nausea for awhile...

https://connect.mayoclinic.org/comment/759513/

Discussion: Nausea from Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Oct 10, 2022

I have severe osteoporosis with 3 spontaneous fractures in 1 year. 2 of those fractures required...

https://connect.mayoclinic.org/comment/875865/

Discussion: Nausea from Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Jun 10, 2023

@susanjohnston I answered these questions on another thread I believe, at length, but will be shorter...

https://connect.mayoclinic.org/comment/1225047/

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Jan 29 9:28pm

*corrected* hi, nemorose. If you have existing cardiac issues, choose a different medication. The FDA does...

https://connect.mayoclinic.org/comment/1231573/

Discussion: Evenity Contraindications for Cardiac Issues

Support Group: Osteoporosis & Bone Health

Posted: Feb 7 12:27pm

Good evening, @sheezit. Welcome to Connect and especially to one of the busiest support groups. Perhaps...

https://connect.mayoclinic.org/comment/1041880/

Discussion: Thoughts on Prolia?

Support Group: Osteoporosis & Bone Health

Posted: Mar 28, 2024

Good afternoon @ldl, and a big welcome to Connect. I was actually on my way to...

https://connect.mayoclinic.org/comment/1004885/

Discussion: Prolia & Jaw Pain

Support Group: Osteoporosis & Bone Health

Posted: Jan 27, 2024

I was on Tymlos for 4.5 months and I did experience side effects but they did...

https://connect.mayoclinic.org/comment/1224965/

Discussion: I am afraid of trying Tymlos and other drugs due to side effects

Support Group: Osteoporosis & Bone Health

Posted: Jan 29 6:26pm

Thank you so much for sharing this! If accurate, it is really statistically profound and I...

https://connect.mayoclinic.org/comment/1153899/

Discussion: What time of day to take Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Oct 8, 2024

Have you had any adverse side effects on Tymlos? And did you titrate up to the...

https://connect.mayoclinic.org/comment/1229437/

Discussion: How many of you improved your osteoporosis without drug intervention?

Support Group: Osteoporosis & Bone Health

Posted: Feb 4 2:02pm

@drsuefowler The original endocrinologist stated I was borderline but prescribed a medication called Thyrolar 3 (I...

https://connect.mayoclinic.org/comment/1248867/

Discussion: Has anyone had a rems bone scan or tbs bone scan?

Support Group: Osteoporosis & Bone Health

Posted: Mar 2 4:13pm

Hi! New in the group. Thought I’d chime in. Started Tymlos about 2 months ago. Started...

https://connect.mayoclinic.org/comment/936805/

Discussion: Timing of Tymlos Injection-AM vs PM

Support Group: Osteoporosis & Bone Health

Posted: Sep 26, 2023

That is the medication (Raloxisene)( my dentist suggested as I had tried Fosamax and Actenol first...

https://connect.mayoclinic.org/comment/1246686/

Discussion: Best medication choice after two year Temlos regime

Support Group: Osteoporosis & Bone Health

Posted: Feb 27 1:20pm

@risagree I can really relate. I did five years of letrozole for breast cancer, then 2...

https://connect.mayoclinic.org/comment/1080415/

Discussion: Best supplements

Support Group: Osteoporosis & Bone Health

Posted: Jun 3, 2024

I have been on Tymlos for 11 months now, and will be on it one more...

https://connect.mayoclinic.org/comment/1250503/

Discussion: Has anyone been using Tymlos?

Support Group: Osteoporosis & Bone Health

Posted: Mar 4 4:53pm

I am doing one year of Prolia then transitioning to something else. I haven't had any...

https://connect.mayoclinic.org/comment/1308410/

Discussion: Anyone taken Evenity (romosozumab) for Osteoporosis?

Support Group: Osteoporosis & Bone Health

Posted: May 20 9:16am

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