Neuropathy Support Group

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Hi Kim, I was recently diagnosed by three Dr's two of who were neurologists. They tell...

https://connect.mayoclinic.org/comment/796705/

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: Jan 14, 2023

Hi everyone. DJ. Roberts I went through the and same situation. I seen 3 neurologist 1...

https://connect.mayoclinic.org/comment/693468/

Discussion: My experience with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 27, 2022

I was thoroughly shocked recently when diagnosed with neuropathy. I thought only people with diabetes (which...

https://connect.mayoclinic.org/comment/666281/

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Dec 29, 2021

Hi John. I don’t take medication for it anymore as it really badly affected me. Took...

https://connect.mayoclinic.org/comment/656661/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Nov 22, 2021

Hello, I’ve been diagnosed with small fiber neuropathy that is progressively getting worse. It started 20...

https://connect.mayoclinic.org/comment/628857/

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Aug 22, 2021

Hi Daniel @hansblix, I'm sorry to hear you've had such a bad experience and have not...

https://connect.mayoclinic.org/comment/310475/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Jan 5, 2021

@lorirenee1 Never a dull moment in our bodies. The sensations you experience in your feet must...

https://connect.mayoclinic.org/comment/283015/

Discussion: Neuropathy & Exercise

Support Group: Neuropathy

Posted: Apr 7, 2020

@goldleaf I think that when pain is so very severe, I develop OCD. The pain interrupts...

https://connect.mayoclinic.org/comment/285905/

Discussion: Vitamin B12 and Neuropathy

Support Group: Neuropathy

Posted: Dec 28, 2019

Good morning @iceblue. Thank you for sharing your current health status. You have dealt with some...

https://connect.mayoclinic.org/comment/284234/

Discussion: Working with Neuropathy?

Support Group: Neuropathy

Posted: Nov 24, 2019

I took the advice of an therapist who studied my leg and back pain, and decided...

https://connect.mayoclinic.org/comment/256455/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: May 13, 2019

For those exploring Gabapentin, I will just add a bit of my experience with this medication...

https://connect.mayoclinic.org/comment/173449/

Discussion: Gabapentin use for neuropathy

Support Group: Neuropathy

Posted: Nov 4, 2017

Hehe, that’s actually a description of literally what it’s like day to day at my house....

https://connect.mayoclinic.org/comment/899228/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Thank you to everybody for your replies. You are appreciated . And for the information about...

https://connect.mayoclinic.org/comment/1149047/

Discussion: Gabapentin dosing

Support Group: Neuropathy

Posted: Sep 29, 2024

I just started SOFT WAVE therapy, which is different than SHOCK WAVE. It is supposed to...

https://connect.mayoclinic.org/comment/1353034/

Discussion: Gabapentin - being linked to increased risk of dementia

Support Group: Neuropathy

Posted: Jul 21 8:17am

@mgh15 My SCS implant was in June, 2017, and the first year was really great! The...

https://connect.mayoclinic.org/comment/677506/

Discussion: Anyone tried Spinal Cord Stimulation for Chronic Pain?

Support Group: Neuropathy

Posted: Feb 4, 2022

I too share problems with balance. One thing that I did purchase and it's been a...

https://connect.mayoclinic.org/comment/1240554/

Discussion: Is loss of balance your primary complaint with neuropathy?

Support Group: Neuropathy

Posted: Feb 19 9:15am

@bethiemae I have Hashimoto’s and hypothyroidism after having my right thyroid lobe removed due to a...

https://connect.mayoclinic.org/comment/1135891/

Discussion: Taking alpha lipoic acid while taking levothyroxine for thyroid ?

Support Group: Neuropathy

Posted: Sep 4, 2024

Glad you have a specific diagnosis. I have exactly the same. I tend to go through...

https://connect.mayoclinic.org/comment/1161897/

Discussion: Length dependent SFN

Support Group: Neuropathy

Posted: Oct 24, 2024

I started experiencing pheriferial neuropathy in 2018 after my second liver transplant in 2017. I went...

https://connect.mayoclinic.org/comment/1102783/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 10, 2024

I've had CIDP for more than ten years and have cycled through every medication various doctors...

https://connect.mayoclinic.org/comment/1099956/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 5, 2024

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