Neuropathy Support Group

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Comments (9,740)

My neurologist explained that my pain comes from: my nervous system is dying and sending out...

https://connect.mayoclinic.org/comment/92948/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 31, 2019

I was diagnosed with idiopathic small fiber peripheral neuropathy at Mayo Rochester and because I have...

https://connect.mayoclinic.org/comment/270170/

Discussion: Responsive doctors at Mayo

Support Group: Neuropathy

Posted: Aug 3, 2019

@mary505 First, welcome to the forums. I am new to this myself and, in a short...

https://connect.mayoclinic.org/comment/212119/

Discussion: Tingling in arms and legs - will this get worse? Can I still function?

Support Group: Neuropathy

Posted: Aug 12, 2018

I have had my neuropathy for about 3yrs. now, they said that it may be a...

https://connect.mayoclinic.org/comment/92274/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: May 29, 2018

I want to thank you for asking me to go over my case. I was frustrated,...

https://connect.mayoclinic.org/comment/335704/

Discussion: Illusive Diagnosis, Pain Increasing

Support Group: Bones, Joints & Muscles

Posted: Feb 19, 2021

Hi. Thanks for the reply. I get you about the activities dropping away one by one....

https://connect.mayoclinic.org/comment/1043528/

Discussion: Treatment options that have worked for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Apr 1, 2024

I'll be honest and say I haven't scrolled through all of the likely amazing and helpful...

https://connect.mayoclinic.org/comment/1018164/

Discussion: Small fiber neuropathy?

Support Group: Neuropathy

Posted: Feb 18, 2024

Good morning, Ed (@njed) I envy you being on a first-name basis with your podiatrist! That...

https://connect.mayoclinic.org/comment/875951/

Discussion: What to ask a podiatrist?

Support Group: Neuropathy

Posted: Jun 10, 2023

I am in the same boat except not as severe (yet). My neuropathy started in May...

https://connect.mayoclinic.org/comment/801708/

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Jan 26, 2023

Good evening @peggioh, thanks for responding. Let's see where we are in our sharing and where...

https://connect.mayoclinic.org/comment/772540/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 12, 2022

I was diagnosed with diabetes about 3.5 years ago. However I spent about 4 or so...

https://connect.mayoclinic.org/comment/760146/

Discussion: Small Fiber Neuropathy; worsening pain

Support Group: Neuropathy

Posted: Oct 12, 2022

Through trial and error, so far I have discovered the burning of my lower limb intensifies...

https://connect.mayoclinic.org/comment/310502/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Jan 11, 2021

Hi, Ray.... After reading of Ed's experience with AFOs last year, I found a pair of...

https://connect.mayoclinic.org/comment/1302313/

Discussion: Ankle-Foot Orthoses (AFOs): Your experience?

Support Group: Neuropathy

Posted: May 12 8:41am

Hi. I too have had hot poker sticks coming from my tailbone to my lower back....

https://connect.mayoclinic.org/comment/272432/

Discussion: Flaming Swords and Fireworks

Support Group: Neuropathy

Posted: Aug 18, 2019

Wow! You certainly have a large family! That can also be a stressor. And I certainly...

https://connect.mayoclinic.org/comment/218807/

Discussion: Pudendal Nerve Entrapment/Neuropathy/Damage

Support Group: Chronic Pain

Posted: Feb 16, 2019

About 10 years ago when I had my doctor how they can tell if I have...

https://connect.mayoclinic.org/comment/91413/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 11, 2016

Yes, thank you for helping me think about the diabetes 2 diagnosis that I received about...

https://connect.mayoclinic.org/comment/1234647/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Feb 11 3:51pm

Very well said!!! Myself? I was diagnosed with idiopathic Small Fiber Neuropathy 3 years ago. But...

https://connect.mayoclinic.org/comment/950161/

Discussion: Psychological effects of living with neuropathy

Support Group: Neuropathy

Posted: Oct 19, 2023

Thank you for sharing such good advice. I do not have Diabetes but When I was...

https://connect.mayoclinic.org/comment/892005/

Discussion: Correlation between peripheral neuropathy and low RBC?

Support Group: Neuropathy

Posted: Jul 8, 2023

Reading all these posts - almost all of it is familiar to me. I have Severe...

https://connect.mayoclinic.org/comment/819366/

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Mar 1, 2023

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