Neuropathy Support Group

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Comments (9,762)

I am using a specialty pharmacy to give me my infusions at home. I have a...

https://connect.mayoclinic.org/comment/219611/

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 9, 2020

My neurologist explained to me that: My nervous system's job is to radiate pain when my...

https://connect.mayoclinic.org/comment/288593/

Discussion: Gabapentin side effects?

Support Group: Chronic Pain

Posted: Apr 14, 2020

Good Morning All! Just wanted to fill you in on what has been going on. I...

https://connect.mayoclinic.org/comment/157257/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 16, 2019

@ray666 Thanks for your response. As I read it, I was reminded of that song from...

https://connect.mayoclinic.org/comment/949351/

Discussion: Psychological effects of living with neuropathy

Support Group: Neuropathy

Posted: Oct 17, 2023

I haven’t been tested for SFN but have been told I do not have it based...

https://connect.mayoclinic.org/comment/781077/

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Dec 5, 2022

Hello @trudi22, I'm sorry to hear you are struggling with balance along with the pain in...

https://connect.mayoclinic.org/comment/773356/

Discussion: Increasingly Difficult to Accept Peripheral Neuropathy

Support Group: Neuropathy

Posted: Nov 15, 2022

I think I started taking statins when I was 35 (now I am 65). I have...

https://connect.mayoclinic.org/comment/772193/

Discussion: Increasingly Difficult to Accept Peripheral Neuropathy

Support Group: Neuropathy

Posted: Nov 11, 2022

My name is Nikki, I'm 46 years old and I was recently diagnosed with idiopathic peripheral...

https://connect.mayoclinic.org/comment/156812/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 17, 2018

Hi Ray I am new here but experienced Sepsis and septic Shock in 2017. I have...

https://connect.mayoclinic.org/comment/1276817/

Discussion: First peripheral neuropathy … and now a sepsis infection? $%*&#@

Support Group: Neuropathy

Posted: Apr 8 4:59am

I've mentioned this elsewhere but I take these daily RN-ALA or just R-ALA 600mg B-1 Benfotiamine...

https://connect.mayoclinic.org/comment/973910/

Discussion: Supplements

Support Group: Neuropathy

Posted: Dec 2, 2023

Good evening @jeffkboyce, I have just re-read your post about neuropathy symptoms. And I am having...

https://connect.mayoclinic.org/comment/920686/

Discussion: Neuropathy Symptoms

Support Group: Neuropathy

Posted: Aug 29, 2023

@magnum52 I've had idiopathic small fiber peripheral polyneuropathy for over 7 years, gradually progressing to more...

https://connect.mayoclinic.org/comment/292470/

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Aug 25, 2020

Are any of you SFN people trying the John Bishop/Facebook supplement program? He claims success with...

https://connect.mayoclinic.org/comment/292413/

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Feb 12, 2020

Hello all, I'm a 70-year-old male and was told by a neurologist in January 2022 that...

https://connect.mayoclinic.org/comment/748800/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Sep 12, 2022

Mine started in my hands and feet in 2011. I am still fighting for an official...

https://connect.mayoclinic.org/comment/1207505/

Discussion: Neuropathy and Cervical Stenosis?

Support Group: Neuropathy

Posted: Jan 9 10:02am

I am 73 and have a Boston Scientific for CRPS in both legs and feet. I...

https://connect.mayoclinic.org/comment/1259091/

Discussion: Anyone tried Spinal Cord Stimulation for Chronic Pain?

Support Group: Neuropathy

Posted: Mar 16 5:09am

@lauraj @retiredteacher Carol, I really hope your husband's health is going in the right direction. Laura,...

https://connect.mayoclinic.org/comment/256396/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Apr 1, 2019

I sympathize. A few years ago, I could not imagine an inactive lifestyle, yet here I...

https://connect.mayoclinic.org/comment/1169892/

Discussion: Pain returns after standing or walking

Support Group: Neuropathy

Posted: Nov 8, 2024

Scam, scam, scam is the name of the game unfortunately!!! I am an 80 year old...

https://connect.mayoclinic.org/comment/1221686/

Discussion: Know anything about neuropathy pills Nerve Free?

Support Group: Neuropathy

Posted: Jan 25 6:14pm

I have had neuropathy in my feet for about five years - no pain and could...

https://connect.mayoclinic.org/comment/1140233/

Discussion: Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Support Group: Neuropathy

Posted: Sep 12, 2024

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