Neuropathy Support Group

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Comments (9,762)

I have idiopathic small fiber peripheral neuropathy that my neurologist suspects could be genetic. I don't...

https://connect.mayoclinic.org/comment/680317/

Discussion: Treatment without diagnosis

Support Group: Neuropathy

Posted: Feb 13, 2022

@stress , I have frequent neuropathy in the inner thigh in the areas where the cardio...

https://connect.mayoclinic.org/comment/661202/

Discussion: Severe pain in upper inner thigh

Support Group: Neuropathy

Posted: Dec 10, 2021

I have working the pain caused by my demyelinating peripheral neuropathy for years. I am in...

https://connect.mayoclinic.org/comment/643763/

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

@rwinney Rachel, Oh Rachel, Oh Rachel!!!! What you are enduring!!!! This list is unbearable. Brutal. You...

https://connect.mayoclinic.org/comment/311053/

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Jul 25, 2020

@blbelanger Yes. My left foot and ankle are much worse than the right. I cannot even...

https://connect.mayoclinic.org/comment/310980/

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Jul 15, 2020

@jesfactsmon Hank, I use Susan's Endless Etha Kratom Blend, and it works well. I also bought...

https://connect.mayoclinic.org/comment/93188/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 20, 2020

Many thanks for the additional info @jeffrapp ! I have only seen my new doctor once,...

https://connect.mayoclinic.org/comment/260418/

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: Dec 18, 2019

Hello @terryrose, Welcome to Connect. I have peripheral neuropathy. My diagnosis is idiopathic small fiber PN...

https://connect.mayoclinic.org/comment/275109/

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Sep 8, 2019

@newzbug @johnbishop Dear Newzbug... All of us here can empathize completely with your struggle, and John...

https://connect.mayoclinic.org/comment/92865/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 11, 2019

@sassymama3 Good morning, I have never experienced the cold feelings like you describe. But I do...

https://connect.mayoclinic.org/comment/1105139/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 13, 2024

Thank you Nancy. It was so nice of you to take the time to respond. I...

https://connect.mayoclinic.org/comment/1269546/

Discussion: severe nerve pain in feet. EMG was normal. Is not neuropathy

Support Group: Neuropathy

Posted: Mar 29 4:16pm

I took this medication only once. 100 mg before going to bed. Three hours later I...

https://connect.mayoclinic.org/comment/1173906/

Discussion: Can Gabapentin make neuropathy pain worse?

Support Group: Neuropathy

Posted: Nov 15, 2024

I haven't written in this thread yet, but I'll try to summarize and hit the high...

https://connect.mayoclinic.org/comment/310382/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Jun 27, 2020

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few...

https://connect.mayoclinic.org/comment/1202690/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Jan 2 7:32pm

@emo. I get what you’re saying and I agree, but I specifically asked the neurologist about...

https://connect.mayoclinic.org/comment/1010200/

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Feb 5, 2024

Sal- I posted about 3 weeks ago that I am on 40mg of Lipitor and have...

https://connect.mayoclinic.org/comment/872567/

Discussion: Tingly, Prickley and tremors from Neuropothy

Support Group: Neuropathy

Posted: Jun 5, 2023

Hi It is terrible to endure such pain from my disturbing experience on . During worst...

https://connect.mayoclinic.org/comment/819237/

Discussion: Severe Breakout Pain in second toe

Support Group: Neuropathy

Posted: Mar 1, 2023

I remember the long PT process of learning to stand in place. Boy was that a...

https://connect.mayoclinic.org/comment/797396/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 16, 2023

Sure! (short version) Following my initial J&J vaccine, I started having numb spots throughout my body....

https://connect.mayoclinic.org/comment/782485/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

Agreed ! Dont believe in coincidences new hip new issues. Like dr tom cowen says patients...

https://connect.mayoclinic.org/comment/712510/

Discussion: High rheumatoid factor with sfn without RA from implant?

Support Group: Neuropathy

Posted: May 29, 2022

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