Neuropathy Support Group

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Comments (9,852)

Diagnosed with SFN after a Sweat Test at Mayo in January 2017; took gabapentin even though...

https://connect.mayoclinic.org/comment/145120/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: May 28, 2018

Five years ago I was at a Conference in Washington DC and walking from the Conference...

https://connect.mayoclinic.org/comment/156261/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 6, 2017

Hi Mike...thanks for your comments. I take EB-N6, prescribed by my podiatrist. It is a B...

https://connect.mayoclinic.org/comment/1345595/

Discussion: New member - 3 years with neuropathy, looking for support

Support Group: Neuropathy

Posted: Jul 11 6:16am

@katec I know just what you're saying. I've seen neurologists, neuro specialists at a university hospital,...

https://connect.mayoclinic.org/comment/275295/

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Oct 25, 2019

Hello @bamaanswerseeker, I would like to add my welcome to Connect along with @JustinMcClanahan and others....

https://connect.mayoclinic.org/comment/1260516/

Discussion: Driving with Numb Feet.

Support Group: Neuropathy

Posted: Mar 17 4:08pm

I have non-diabetic neuropathy --'idiopathic' and have for 20 years--I'm 71. I now also have light...

https://connect.mayoclinic.org/comment/1259333/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Mar 16 9:58am

I just had a positive MRI for T11-12 focal herniation with cord impingement. My feet have...

https://connect.mayoclinic.org/comment/1238179/

Discussion: For those with Radiculopathy…..

Support Group: Neuropathy

Posted: Feb 16 10:37am

I have numbness/little knives in my mouth…….feels like wearing dentures that zap me. Neurologist says Atypical...

https://connect.mayoclinic.org/comment/1203567/

Discussion: Small Fiber Neuropathy and Face?

Support Group: Neuropathy

Posted: Jan 4 9:01am

Hi, I have balance issues, vertigo and some numbness to the legs and feet, neither of...

https://connect.mayoclinic.org/comment/1262119/

Discussion: Riding a bike - OK if you have balance issues standing or walkng?

Support Group: Neuropathy

Posted: Mar 19 4:34pm

I have - Daiwa Felicity Foot Massager with Heat - Electric Foot Massagers for Plantar Fasciitis,...

https://connect.mayoclinic.org/comment/1195814/

Discussion: has anyone heard if a vibration plate helps?

Support Group: Neuropathy

Posted: Dec 23, 2024

I have spondolethis at l4-l5 and severe stenosis in that area. I had radio frequency in...

https://connect.mayoclinic.org/comment/1276220/

Discussion: Radiofrequency (RF) for neuropathy

Support Group: Neuropathy

Posted: Apr 7 8:41am

I have posted a few times about my experience with red light therapy. It seems that...

https://connect.mayoclinic.org/comment/1274963/

Discussion: Anyone tried using red light therapy?

Support Group: Neuropathy

Posted: Apr 5 2:16pm

My husband has neuropathy in his feet- many times at night they feel cold when they...

https://connect.mayoclinic.org/comment/1288486/

Discussion: Anyone tried using red light therapy?

Support Group: Neuropathy

Posted: Apr 23 8:17pm

Hi, I have not been diagnosed but have been to several doctors and had blood work...

https://connect.mayoclinic.org/comment/653736/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 13, 2021

@kforrest The alpha Lipoic acid, Acetyl l carnitine, melatonin and magnesium have all helped me and...

https://connect.mayoclinic.org/comment/1153130/

Discussion: Taking amitriptyline for neuropathy?

Support Group: Neuropathy

Posted: Oct 6, 2024

Hi @solobeee1 My Ivig which is for something else, took at least six months to make...

https://connect.mayoclinic.org/comment/1147962/

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 27, 2024

I have found that physicians are little or no help with neuropathy other than wanting to...

https://connect.mayoclinic.org/comment/1140930/

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Sep 13, 2024

I take the highest dose 3600 mg of gabapentin in 800 mg dosages 3 times a...

https://connect.mayoclinic.org/comment/1098205/

Discussion: Has Gabapentin helped anyone out there?

Support Group: Neuropathy

Posted: Jul 2, 2024

I was diagnosed with small fiber peripheral neuropathy in 2019. It apparently is from a undetermined...

https://connect.mayoclinic.org/comment/1076227/

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: May 28, 2024

Gabapentin didn’t help me. I am now on Baclofen for my fibromyalgia and it helps my...

https://connect.mayoclinic.org/comment/930617/

Discussion: Can neuropathy in my feet cause balance problems?

Support Group: Neuropathy

Posted: Sep 15, 2023

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