Neuropathy Support Group

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Mid 2018-Stage 3 advanced prostate, radiation nerve damage to colon/rectum and penis . Lupron start 7/18,...

https://connect.mayoclinic.org/comment/811477/

Discussion: Devastated by neuropathy

Support Group: Neuropathy

Posted: Feb 14, 2023

My Grandmother name is Fala, so that is what I use here. I have progressing idiopathic...

https://connect.mayoclinic.org/comment/800232/

Discussion: Idiopathic Progressive Polyneuropathy: How to find a specialist?

Support Group: Neuropathy

Posted: Jan 22, 2023

I have same as you in feet and my lower legs. Incredibly painful and uncomfortable. I...

https://connect.mayoclinic.org/comment/755185/

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 29, 2022

It depends. I think I have learned to somewhat ignore it…is that possible? Sometimes. Right this...

https://connect.mayoclinic.org/comment/732602/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 30, 2022

I have severe neuropathy in my feet and ankles. Started about 8 months ago and I...

https://connect.mayoclinic.org/comment/708350/

Discussion: Alcohol-related Neuropathy: Anyone had good treatment results?

Support Group: Neuropathy

Posted: May 15, 2022

Thankyou for this information , I will bring it up with my neurologist , as my...

https://connect.mayoclinic.org/comment/693998/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 29, 2022

I too had extremely sore and red feet and had gone from Medium to W, E2....

https://connect.mayoclinic.org/comment/256568/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Jul 23, 2020

Barb, that is exactly where I am. Foot pain is the worst, especially "frozen" feet, but...

https://connect.mayoclinic.org/comment/158684/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 23, 2020

So far his only symptom, that we are aware of, is severe pain on the bottoms...

https://connect.mayoclinic.org/comment/281825/

Discussion: Unknown Cause or Idiopathic SFN

Support Group: Neuropathy

Posted: Nov 6, 2019

I came across this book as I get automatic emails for various subjects from several academic...

https://connect.mayoclinic.org/comment/277482/

Discussion: Scientific research and scholarly papers on Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Oct 7, 2019

@albiet, I have neuropathy and pain is mainly in my feet. I have had it since...

https://connect.mayoclinic.org/comment/243645/

Discussion: Just Diagnosed with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Apr 4, 2019

Hello @paulfj067 -- Welcome to Connect. I'm glad you found us. I have idiopathic small fiber...

https://connect.mayoclinic.org/comment/92366/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 31, 2018

Hi @wanda78wren, I would like to add my welcome along with @kanaazpereira. I have idiopathic small...

https://connect.mayoclinic.org/comment/156502/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 10, 2018

So for further clarification… About eight years ago I was diagnosed with autoimmune disease with perphial...

https://connect.mayoclinic.org/comment/161456/

Discussion: Anyone have the FGFR3 antibody gene?

Support Group: Neuropathy

Posted: Mar 2, 2018

1. I am using Gabapentin,300 mg, twice daily, for jabbing/pins and needles. Some people are using...

https://connect.mayoclinic.org/comment/91878/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: May 2, 2017

From what I’ve read there’s a lot of overlap in symptoms reported for long Covid and...

https://connect.mayoclinic.org/comment/701178/

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 21, 2022

The doctor I saw said that was all that was needed and after the next month...

https://connect.mayoclinic.org/comment/1067200/

Discussion: Does anybody have experience with SANEXAS for neuropathy?

Support Group: Neuropathy

Posted: May 13, 2024

Sounds like me...but I have nobody to complain to. Here is my pain reliever. (Nothing over...

https://connect.mayoclinic.org/comment/1046556/

Discussion: Cold Feet/Legs, Pain, and No Sleep

Support Group: Neuropathy

Posted: Apr 6, 2024

Hi, could you tell me what P5P and Alpha lipoid Acid are? I have peripheral neuropathy...

https://connect.mayoclinic.org/comment/1041328/

Discussion: Do not take gabapentin, makes it worse

Support Group: Neuropathy

Posted: Mar 27, 2024

Deb....I was tested for CMT...clear. I had small markers way out on the side lines but...

https://connect.mayoclinic.org/comment/974814/

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Dec 4, 2023

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