Neuropathy Support Group

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Comments (8,408)

@ray666 - Being tangled up with the normal struggles of PN and the sepsis situation is...

https://connect.mayoclinic.org/comment/1087123/

Discussion: Whats my future?

Support Group: Neuropathy

Posted: Jun 15, 2024

I have been recently diagnosed with erythromelalgia in both hands and feet. I am 53yr old...

https://connect.mayoclinic.org/comment/1018157/

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 18, 2024

Yes, Chris, I have had purple toes for years.....never thought it was a problem! And, I...

https://connect.mayoclinic.org/comment/1014381/

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 12, 2024

I love my Hoka Bondi tennis shoes - they have wide widths, and the Biondi model...

https://connect.mayoclinic.org/comment/941564/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Oct 4, 2023

To NJ Ed I have bi-lateral drop foot due to axonal peripheral neuropathy. For several years...

https://connect.mayoclinic.org/comment/940233/

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Oct 2, 2023

I have EM symptoms and get flared in hands and feet. Any environmental temp above 72-73...

https://connect.mayoclinic.org/comment/920788/

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Aug 29, 2023

I’ve had periphery neuropathy in both feet for 20+ years. I take Gabapentin to relieve the...

https://connect.mayoclinic.org/comment/911645/

Discussion: Neuropathy in both feet

Support Group: Neuropathy

Posted: Aug 12, 2023

Same for me I had the maximum strength CBD cream and it did nothing for peripheral...

https://connect.mayoclinic.org/comment/911408/

Discussion: CBD oil for Neuropathy

Support Group: Neuropathy

Posted: Aug 11, 2023

Hi Paul - seems like finding the right footware is trial and error for all of...

https://connect.mayoclinic.org/comment/898653/

Discussion: Cold tingling every time I walk, nerve damage or aggravation?

Support Group: Neuropathy

Posted: Jul 19, 2023

Afraid I have no answers but I suffer the same numbness in both hands and both...

https://connect.mayoclinic.org/comment/855792/

Discussion: Severe numbness in hands from neuropathy

Support Group: Neuropathy

Posted: May 7, 2023

Hi, I am new to this site and have enjoyed reading many of the comments. I...

https://connect.mayoclinic.org/comment/822981/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 8, 2023

Yes MGUS can cause numbness. I have had the numbness for about three years now. It...

https://connect.mayoclinic.org/comment/813678/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

Nice! I wish I could do the same but have not found any relief from neurapathy...

https://connect.mayoclinic.org/comment/796678/

Discussion: B-6 vitamin danger!

Support Group: Neuropathy

Posted: Jan 14, 2023

Hi, I too have numb toes and half of my feet on both. I have diabetes...

https://connect.mayoclinic.org/comment/794611/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 9, 2023

I was on Lyrica and it wasn’t helping much so my doctor switched me to Gabapentin...

https://connect.mayoclinic.org/comment/766532/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Oct 28, 2022

Hi @leslie47, Welcome to Connect. There is a discussion on the topic started by @margaretob but...

https://connect.mayoclinic.org/comment/726003/

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Jul 12, 2022

Hi Angie I too have neuropathy in my feet. The Protocol is an OTC vitamin/mineral plan...

https://connect.mayoclinic.org/comment/715217/

Discussion: Have you tried the new Protocol 525 product for neuropathy relief?

Support Group: Neuropathy

Posted: Jun 7, 2022

I have tried Gabapentin for a few years and it does not seem to work; so,...

https://connect.mayoclinic.org/comment/706494/

Discussion: Foot neuropathy: What gives you relief?

Support Group: Neuropathy

Posted: May 8, 2022

I have Cold, cold feet and balance issues from peripheral neuropathy. Today I read a post...

https://connect.mayoclinic.org/comment/704471/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: May 1, 2022

Hi Nothing good to report Ingested 500mg x3 a day. Did go up to 800 mg....

https://connect.mayoclinic.org/comment/702295/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Apr 25, 2022

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