Neuropathy Support Group

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I want to follow the responses that are posted here. My sister developed terrible neuropathy in...

https://connect.mayoclinic.org/comment/901674/

Discussion: Need hope: Neuropathy from chemo

Support Group: Cancer: Managing Symptoms

Posted: Jul 24, 2023

In a matter of 3-4 mo, I lost tons of feeling in both feet & lower...

https://connect.mayoclinic.org/comment/882397/

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Jun 21, 2023

Occasional twitches are part of my axonal PN. Sometimes I get a “storm” of electrical pulses,...

https://connect.mayoclinic.org/comment/849074/

Discussion: Peripheral Neuropathy Twitching?

Support Group: Neuropathy

Posted: Apr 25, 2023

I myself started having pins, needles and burning in my feet and legs about a week...

https://connect.mayoclinic.org/comment/790058/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Dec 29, 2022

The word you used stiffness is a good description of the symptoms I have as well....

https://connect.mayoclinic.org/comment/788749/

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Dec 25, 2022

I had bad side effect from gabapentin. CBC oil is helpful. I also take a proprietary...

https://connect.mayoclinic.org/comment/724916/

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jul 8, 2022

I take 300 mg of gabapentin 3 times a day. If I miss a dose my...

https://connect.mayoclinic.org/comment/724537/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 7, 2022

Welcome @gbny1224, I'm not sure I understand why you want to take the nicotinamide riboside supplement....

https://connect.mayoclinic.org/comment/697277/

Discussion: Eliminating Foods for Neuropathy pain

Support Group: Neuropathy

Posted: Apr 8, 2022

I know that there are others who have scalp itchiness from having Neuropathy (it is that...

https://connect.mayoclinic.org/comment/626669/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 15, 2021

Because my immune system response to pfizer has reactivated by PN and led to further nerve...

https://connect.mayoclinic.org/comment/602017/

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 15, 2021

We are having a heat wave and I still have to wear socks to bed because...

https://connect.mayoclinic.org/comment/256561/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Jul 19, 2020

Hi, @lioness, So psychic dearie, vbg, how much of my first food order will arrive? Mine...

https://connect.mayoclinic.org/comment/283121/

Discussion: Neuropathy & Exercise

Support Group: Neuropathy

Posted: Apr 14, 2020

DIagnosed with INSULIN dependent DIABETES in 1995, am 75 and a half now. I get good...

https://connect.mayoclinic.org/comment/93093/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 1, 2020

Thanks John. I will follow up with what you wrote about the Protocol. I have mostly...

https://connect.mayoclinic.org/comment/277306/

Discussion: Supplement combination/effectiveness

Support Group: Neuropathy

Posted: Oct 3, 2019

@burningfeetinphoenix My pain specialist suggested I try capsaicin, and I saw no improvement. Stepping up to...

https://connect.mayoclinic.org/comment/275200/

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Sep 15, 2019

Hi, @summer15 - Glad you've connected with @johnbishop. I also would like to introduce you to...

https://connect.mayoclinic.org/comment/268153/

Discussion: Sensory Peripheral Neuropathy

Support Group: Neuropathy

Posted: Jul 8, 2019

I too have had PMR and treated successfully with prednisone. About a year after my PMR...

https://connect.mayoclinic.org/comment/145170/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Feb 20, 2019

My idiopathic PN (although I think docs didn't explore some possible options) began in my feet...

https://connect.mayoclinic.org/comment/156524/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 13, 2018

I find it better to get an insole that works for you then use it in...

https://connect.mayoclinic.org/comment/1161495/

Discussion: What shoes and/or insoles work for you? How about OOFOS?

Support Group: Neuropathy

Posted: Oct 23, 2024

I take lyrics which helps my neuropathy on my hands , legs and feet. I tried...

https://connect.mayoclinic.org/comment/1122867/

Discussion: Foot neuropathy: What gives you relief?

Support Group: Neuropathy

Posted: Aug 13, 2024

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