Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with carcinoid cancer in 2003. I am still receiving 1 sandostation injection every...

https://connect.mayoclinic.org/comment/773744/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2022

Comment

Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...

https://connect.mayoclinic.org/comment/872940/

Discussion: Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Comment

I'm glad that my description of the "day in the life of Lutethera " will help...

https://connect.mayoclinic.org/comment/995251/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 9:01pm

Comment

@briea Welcome to the Mayo Clinic Connect. You will find lots of support and people who...

https://connect.mayoclinic.org/comment/914666/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

Comment

Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...

https://connect.mayoclinic.org/comment/747582/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

Comment

Wow! To all in this discussion. My husband is due to have his first liver debulking...

https://connect.mayoclinic.org/comment/771459/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Comment

I started on Eberolimus 10mg daily March 2023. I developed mouth sores which bece more manageable...

https://connect.mayoclinic.org/comment/1117855/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4 4:49pm

Comment

I’m so sorry you’re having all these problems! My NET was found in my cecum during...

https://connect.mayoclinic.org/comment/898113/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

Comment

Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...

https://connect.mayoclinic.org/comment/932191/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Comment

Hi, you have been through a lot, hoping you can find the answers you need. The...

https://connect.mayoclinic.org/comment/918714/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2023

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