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2,251 total results
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Discussions (190)
Comments (2,061)
Comment
Thank you. The IR department didn’t even leave me a phone number to call. I finally...
https://connect.mayoclinic.org/comment/1334824/
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Discussion:
Severe pain after stage2 y90 treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 25 10:22am
Comment
My husband has been on CAP and TEM and also a monthly injection of lanreotide for...
https://connect.mayoclinic.org/comment/885058/
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Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 25, 2023
Comment
Wow! You are truly a determined person and a good example for me. I have often...
https://connect.mayoclinic.org/comment/854458/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
Comment
Hi Teresa. I now know that I am NET. I didn't even know what that was...
https://connect.mayoclinic.org/comment/776779/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 23, 2022
Comment
The thing that gives me hope is that all my blood work was normal. Like liver,...
https://connect.mayoclinic.org/comment/1195438/
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Discussion:
CEA test: Just starting the diagnostic testing phase: Waiting is hard
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 22, 2024
Comment
Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...
https://connect.mayoclinic.org/comment/1104370/
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Discussion:
What is a normal range for Chromogranin A test? Mine was 99 in 2021.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 12, 2024
Comment
I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has...
https://connect.mayoclinic.org/comment/134661/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 25, 2018
Comment
Hi, I had 1.5m of my ileum removed 2022 due to nets. Was in hospital for...
https://connect.mayoclinic.org/comment/1273504/
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Discussion:
Small Intestine Resection
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 3 3:06pm
Comment
We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....
https://connect.mayoclinic.org/comment/1218810/
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Discussion:
Clay colored bowels & diarrhea side effects with Octreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22 9:23am
Comment
Thank you. I do have a pain doctor at Mayo - for another (random?) nerve pain...
https://connect.mayoclinic.org/comment/905585/
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Discussion:
Pain relief when lying flat?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 1, 2023
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