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Discussions (190)
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Comment
My husband did great with the PRRT 4 treatments. He never had any scans orMRI to...
https://connect.mayoclinic.org/comment/1048898/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 11, 2024
Comment
Are you having the surgery at the same hospital that misdiagnosed? Surgery is always the best...
https://connect.mayoclinic.org/comment/932587/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 19, 2023
Comment
Wow, hang in there. My situation was that i had a blockage caused by the SINET....
https://connect.mayoclinic.org/comment/919988/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 27, 2023
Comment
Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...
https://connect.mayoclinic.org/comment/908363/
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Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 6, 2023
Comment
@gneiss50 I am so pleased that you have had the additional tests as a follow up....
https://connect.mayoclinic.org/comment/809236/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10, 2023
Comment
I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...
https://connect.mayoclinic.org/comment/806203/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2023
Comment
Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...
https://connect.mayoclinic.org/comment/796241/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 13, 2023
Comment
Hi I agree with this "wait" approach as well. My husband was diagnosed last year with...
https://connect.mayoclinic.org/comment/1350282/
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Discussion:
What's next after SiNETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17 11:18am
Comment
Have had PRRT as well as distal pancreatectomy, but my tumors were quite visible. I can...
https://connect.mayoclinic.org/comment/1364303/
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Discussion:
Interested in your experience with treatments of PRRT vs surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 5 1:16pm
Comment
Mine was found via colonoscopy. I have had stomach issues my whole life that were undiagnosed....
https://connect.mayoclinic.org/comment/1181865/
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Discussion:
NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 29, 2024
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