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Discussions (128)
Comments (1,498)
Comment
Thank you for reaching out. I am a patient of Dr. Jason Starr at Mayo in...
https://connect.mayoclinic.org/comment/831954/
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Discussion:
Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
Hello @wdd18054 I appreciate your post. I am Teresa and a volunteer mentor with Connect. I...
https://connect.mayoclinic.org/comment/186230/
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Discussion:
Multiple abnormal hormone levels - Could it be autoimmune related?
Support Group:
Autoimmune Diseases
Posted: Feb 23, 2018
Comment
Mollie59, I have a friend who had open-heart surgery last year and it was amazing to...
https://connect.mayoclinic.org/comment/162798/
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Discussion:
Diagnosed with aggressive NET. Happy to see this group!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 29, 2017
Comment
The same week I met with the Dr at Dana Farber the first of September 2022...
https://connect.mayoclinic.org/comment/885611/
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Discussion:
Feeling discouraged and too many specialists
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
They map your liver about 30 days before the treatment I have tumors on both sides...
https://connect.mayoclinic.org/comment/1039825/
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Discussion:
Anyone have experience with "functioning" Pancreatic NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25 8:03am
Comment
Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...
https://connect.mayoclinic.org/comment/834012/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29, 2023
Comment
Hello @marifersitacastro, I am glad that you are seeking out help for your dad as he...
https://connect.mayoclinic.org/comment/612492/
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Discussion:
July's Neuroendocrine Support Group
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 29, 2021
Comment
@tomewilson Hi Tom: I have not heard that this test is no longer use. I still...
https://connect.mayoclinic.org/comment/135493/
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Discussion:
The role of Tumor Marker Labs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 8, 2017
Comment
I would be curious to know what research you did that pointed you to Mayo? I...
https://connect.mayoclinic.org/comment/85560/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 8, 2017
Comment
Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...
https://connect.mayoclinic.org/comment/1071318/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 20 12:19am
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