Neuroendocrine Tumors (NETs) Support Group

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Comment

I appreciate learning more about your story. You mentioned that your NET did not show up...

https://connect.mayoclinic.org/comment/1203359/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 7:06pm

Comment

High interest in Histotripsy so I hope patients continue to report their experiences and thoughts on...

https://connect.mayoclinic.org/comment/1173100/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 13, 2024

Comment

I never got the second vaccines. I’m doing ok. Lately being getting a lot of abdominal...

https://connect.mayoclinic.org/comment/951591/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Comment

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

Comment

My dad has high grade NEC primary pancreas with liver mets. Showed progression on carbo/etopo and...

https://connect.mayoclinic.org/comment/866565/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

I had my first surgery 8 months ago. My Oncologist was busy so I spoke to...

https://connect.mayoclinic.org/comment/787564/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Comment

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Comment

@spendrous: I have NET Specialist Oncoligist at City of Hope treating my sm. intestine primary with...

https://connect.mayoclinic.org/comment/1207539/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 10:25am

Comment

Good morning, the small intestines was the primary source of my NET’s before metastasizing to my...

https://connect.mayoclinic.org/comment/1204419/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 9:59am

Comment

Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...

https://connect.mayoclinic.org/comment/846399/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

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