Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,626 total results
All
Discussions (128)
Comments (1,498)
Comment
It took me years to come across my own course of action. And my doctors were...
https://connect.mayoclinic.org/comment/1011819/
Copy link to clipboard
Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8 9:47am
Comment
My condition is similar stage 4 due to it metastasizing to the liver, origin is the...
https://connect.mayoclinic.org/comment/1106025/
Copy link to clipboard
Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15 11:40am
Comment
Hi vtn. I agree with what has been previously said. You have some people in here...
https://connect.mayoclinic.org/comment/859271/
Copy link to clipboard
Discussion:
Just diagnosed with PNET: Any thoughts on watch & wait approach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2023
Comment
Thanks for the reminder to fill you in. I did ask my IR who did my...
https://connect.mayoclinic.org/comment/957412/
Copy link to clipboard
Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2023
Comment
Hi, I found it during colonoscopy. It showed up as 2cm polyp so close to my...
https://connect.mayoclinic.org/comment/1054489/
Copy link to clipboard
Discussion:
Large Appendiceal NET, well-differentiated
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20 11:13pm
Comment
Just thought I would contact this group to say Hi. I was diagnosed with NETS about...
https://connect.mayoclinic.org/comment/689085/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 13, 2022
Comment
Welcome to Mayo Connect, @glenkinman68 I am glad that you have joined our NETs discussion group....
https://connect.mayoclinic.org/comment/134547/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 21, 2019
Comment
Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...
https://connect.mayoclinic.org/comment/854586/
Copy link to clipboard
Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
Comment
In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...
https://connect.mayoclinic.org/comment/896094/
Copy link to clipboard
Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15, 2023
Comment
Hi, @matt2024 ! Thank you for reaching out! I am "almost"vegetarian- very little meat and ear...
https://connect.mayoclinic.org/comment/1084252/
Copy link to clipboard
Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10 10:36am
First
Previous
...
92
93
94
95
96
97
98
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect