Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi Joy (good positive name) I believe your primary source is in your sm. intestine (same...

https://connect.mayoclinic.org/comment/953010/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...

https://connect.mayoclinic.org/comment/668825/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2022

Comment

My husband was diagnosed with GTSBnet grade1-grade2 well-differented tumor 3 years ago. First you have to...

https://connect.mayoclinic.org/comment/1204614/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 1:05pm

Comment

My husband cancer was discovered at grade 3 well differentiated stage 4. He was also given...

https://connect.mayoclinic.org/comment/1100693/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2024

Comment

I've had 2 of my scheduled 4 TACE treatments and the first one really kicked my...

https://connect.mayoclinic.org/comment/866844/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

I was on everolimus, but drs felt it was not aggressive enough. Have been put on...

https://connect.mayoclinic.org/comment/838525/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Comment

Outlaw, my wife has almost the same area of pancreas with NET’s mass diagnosed last April....

https://connect.mayoclinic.org/comment/783580/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

Comment

My primary NET was in the small intestine lining—did not show up in any scans. I...

https://connect.mayoclinic.org/comment/918263/

Discussion: Thank you for your words of encouragement on this journey! Now ???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2023

Comment

My wife was diagnosed with stage 4 NET in April 2022, now after chemo, surgery, PRRT...

https://connect.mayoclinic.org/comment/1208188/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 8:50am

Comment

Thank you! My liver transplant was due to an autoimmune disease called PSC. This is my...

https://connect.mayoclinic.org/comment/1328778/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 10:32pm

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