Neuroendocrine Tumors (NETs) Support Group

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Comment

Learning more about NETs. There will be another Lunch with the Experts this Thursday, January 13,...

https://connect.mayoclinic.org/comment/669987/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2022

Comment

@pontiac - thanks for your post! I completely understand your frustrations! After my Whipple procedure in...

https://connect.mayoclinic.org/comment/831222/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

@bnjncrew - welcome to the NET insulinoma group. There are several on or around this page...

https://connect.mayoclinic.org/comment/831029/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

I had liver scans & surgery as a first step since I had been undiagnosed to...

https://connect.mayoclinic.org/comment/789953/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2022

Comment

Three tests were done - Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed...

https://connect.mayoclinic.org/comment/283430/

Discussion: NETest from WREN Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2020

Comment

@gig666 We can't say what treatment to do, but what we all can say on this...

https://connect.mayoclinic.org/comment/1054639/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 8:57am

Comment

I also had a tumor on my Ilium which I chose to have removed with surgery....

https://connect.mayoclinic.org/comment/1002930/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24 10:16am

Comment

Hi there! I certainly understand how frightening and daunting this can be for you both. I...

https://connect.mayoclinic.org/comment/1070467/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18 4:24pm

Comment

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

My NET started in the pancreas (though I don't have pancreatic cancer) and migrated to the...

https://connect.mayoclinic.org/comment/1150696/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2 10:13am

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