Neuroendocrine Tumors (NETs) Support Group

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Comment

I also have metastatic liver both sides Also now in my spine L1 and T10 and...

https://connect.mayoclinic.org/comment/978450/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

Comment

I think we are all given a variety of answers depending on? (not sure what), but...

https://connect.mayoclinic.org/comment/952689/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

Update- surgery on Feb.1st went well. My tumor was humongous - 1.8 kg! Succsessfully removed with...

https://connect.mayoclinic.org/comment/813585/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

I am also like you. I am new to this, but my diagnosis is worse in...

https://connect.mayoclinic.org/comment/776777/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Comment

3 weeks ago I had a MRI and it found a tumour on the tail of...

https://connect.mayoclinic.org/comment/692355/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

Comment

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2024

Comment

@astaingegerdm thank you. My CBC count is starting to show stress on my liver and pancreas...

https://connect.mayoclinic.org/comment/680634/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2022

Comment

I honestly have no idea but you should reach out to Mayo and see if they...

https://connect.mayoclinic.org/comment/1392724/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 8:27am

Comment

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Comment

Hi Stevestenberg31 Your detail was very helpful and I am at a crossroads right now. I...

https://connect.mayoclinic.org/comment/919701/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

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