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Discussions (128)
Comments (1,498)
Comment
Hi, Great questions. I was 64. It was not a “choice” that was planned for in...
https://connect.mayoclinic.org/comment/950056/
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Discussion:
Liver Transplant to Treat NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 19, 2023
Comment
@helloitsme Lean on all of us for help, many of us have been on this journey...
https://connect.mayoclinic.org/comment/851636/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
Hello! Just thought I'd take a minute and send an update. I was at Mayo for...
https://connect.mayoclinic.org/comment/188657/
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Discussion:
NETS tumor in the plural sac around left lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 2, 2018
Comment
Well, love getting some good news! Mayo review of my local CT compared to Mayo scans...
https://connect.mayoclinic.org/comment/1018938/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 19 10:58pm
Comment
My husband has G3 Stage 4 insulinoma, Primary in Pancreas and “Too many to count in...
https://connect.mayoclinic.org/comment/1047677/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 9 5:33am
Comment
Hi I was diagnosed last July with an insulinoma,tumor in my pancreas and liver lesions. I...
https://connect.mayoclinic.org/comment/831185/
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Discussion:
Neuroendocrine Insulinoma: Is treatment different for this type?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 24, 2023
Comment
Hello Teresa, I found this form by just searching online for any information that could prepare...
https://connect.mayoclinic.org/comment/784626/
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Discussion:
Anyone out there have PNET experiences and outcomes to share?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 14, 2022
Comment
Insulinoma causes excessive release of insulin and results in hypoglycemia. My husband is not a candidate...
https://connect.mayoclinic.org/comment/897218/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2023
Comment
Hi @Jestjohn, I have NET small intestine primary tumor near pyloric channel & duodenum that was...
https://connect.mayoclinic.org/comment/981222/
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Discussion:
Anyone have a neuroendocrine tumor in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 15, 2023
Comment
Sorry to hear about your husband's pain during recovery. I had a modified whipple surgery, liver...
https://connect.mayoclinic.org/comment/817685/
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Discussion:
Has anyone had referred shoulder pain in post pancreatectomy?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 26, 2023
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