Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,258 total results

Comment

Hello, I also have a question about Afinitor. Apparently, its better at treating the PIK3 CA...

https://connect.mayoclinic.org/comment/600088/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2021

Comment

I’m so happy to announce I had a good report on yesterday, November 7 my cat...

https://connect.mayoclinic.org/comment/770639/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

Comment

Curious to know if anyone on your team has talked about the possible implications of transplantation...

https://connect.mayoclinic.org/comment/1198208/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a...

https://connect.mayoclinic.org/comment/1218822/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:33am

Comment

Wow! What a journey you've been through. I'm so sorry that you now have to deal...

https://connect.mayoclinic.org/comment/1328775/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 10:20pm

Comment

My husband had to have an open surgery because his 3mm tumor was deep in his...

https://connect.mayoclinic.org/comment/1003834/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Thanks for your update. I’ll have a 3rd injection of Lanreotide next week and have a...

https://connect.mayoclinic.org/comment/937328/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

Hi i am 55 male. I had colonoscopy 10/1/2021 and was told polyps were benign and...

https://connect.mayoclinic.org/comment/932623/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

I have liver cancer my doctor give a chill pill each time I get MIR (...

https://connect.mayoclinic.org/comment/831688/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 25, 2023

Comment

At 50 I had a right hemecolectomy. 2 years ago was told it spread to my...

https://connect.mayoclinic.org/comment/1196471/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Follow

7177

4 minutes ago

Digestive Health

Follow

16438

14 minutes ago

Follow

711

1 hour ago

Pancreatic Cancer

Follow

3126

1 hour ago

Cancer: Managing Symptoms

Follow

4941

2 hours ago