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Discussions (128)
Comments (1,498)
Comment
@badi I'm a 59 year old female, and I, too, am Stage IV Carcinoid. My original...
https://connect.mayoclinic.org/comment/822156/
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Discussion:
Stage 4 Carcinoid tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 7, 2023
Comment
Hi Mark, I am not familiar with the term ‘Type 2A’. Please help me. Is this...
https://connect.mayoclinic.org/comment/808571/
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Discussion:
PRRT has been approved by the FDA Jan 26, 2018, as expected
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 9, 2023
Comment
I’ve been receiving injections every 4 weeks since 12/22. I find the few days after the...
https://connect.mayoclinic.org/comment/919102/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 26, 2023
Comment
From @helloitsme: "My oncologist would not order a PET scan and said it was not needed...
https://connect.mayoclinic.org/comment/898364/
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Discussion:
NET symptoms despite follow-up lab work ok
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
I also have insulinomas. . . Diagnosed originally in 2015 with 2 tumors in the pancreas,...
https://connect.mayoclinic.org/comment/867769/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 27, 2023
Comment
@steven1953: I am sorry that you are dealing with the uncertainty of tumor progression. My situation...
https://connect.mayoclinic.org/comment/1110367/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 23 9:31am
Comment
Welcome Kate. You have my sympathy as you go through this time in your life. I...
https://connect.mayoclinic.org/comment/778015/
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Discussion:
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 27, 2022
Comment
Sophiarose, Octreotide is used to help manage the effects of neuroendocrine tumors such as flushing and...
https://connect.mayoclinic.org/comment/830230/
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Discussion:
Stopping Octreotide???
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 22, 2023
Comment
Hi @mmerry I am on the other side of this big country - Vancouver, and with...
https://connect.mayoclinic.org/comment/924566/
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Discussion:
Just diagnosed with pancreatic NET stage 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 5, 2023
Comment
Hi, I went through my part 2 of 3 of the embolization and the 3 tumors...
https://connect.mayoclinic.org/comment/767069/
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Discussion:
Pituitary and pNET: Can't do the things I love anymore
Support Group:
Brain Tumor
Posted: Oct 29, 2022
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