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Discussions (128)
Comments (1,498)
Comment
I agree. Im 55yrs old. I was 185lbs when i started my once a month Lanreotide...
https://connect.mayoclinic.org/comment/860207/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 15, 2023
Comment
Absolutely, I apologize for not explaining it better. At our initial diagnosis of NETwe we’re terrified...
https://connect.mayoclinic.org/comment/933208/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2023
Comment
I had a follow up with the Oncologist earlier this week. I inquired about a NET...
https://connect.mayoclinic.org/comment/835888/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
Thanks for your post. Can you tell me how old your wife is please? I had...
https://connect.mayoclinic.org/comment/1075303/
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Discussion:
newly diagnosed pNET on tail of pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26 5:59pm
Comment
I understand your fear of what’s to come I’m a NET survivor first diagnosed in September...
https://connect.mayoclinic.org/comment/777324/
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Discussion:
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 25, 2022
Comment
This site was given to me at Mayo's in Mn.. I am sooo glad to be...
https://connect.mayoclinic.org/comment/134546/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 21, 2019
Comment
Thank you for this up date. I was diagnosed July 2022..have had chemo-Fo-flox every two weeks...
https://connect.mayoclinic.org/comment/867436/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 27, 2023
Comment
I wouldn’t mind at all but it’s lengthy 😁 2008-At Stanford Specialists:Distal pancreatectomy with splenectomy 2009-Began...
https://connect.mayoclinic.org/comment/978180/
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Discussion:
Found PNET on tail of pancreas but told it’s nonfunctional
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 10, 2023
Comment
Thank you, yes that is me and my passion that the pain keeps me from. I...
https://connect.mayoclinic.org/comment/733482/
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Discussion:
Pituitary and pNET: Can't do the things I love anymore
Support Group:
Brain Tumor
Posted: Aug 2, 2022
Comment
Hello, ginnym3! I went to debulking surgery for a large pancreatic tumour (20×16 cm) with liver...
https://connect.mayoclinic.org/comment/966535/
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Discussion:
Any tips about Cytoreductive, debulking Surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 17, 2023
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