Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,251 total results

Comment

Hello @amygirl, Many members have responded to you regarding different treatments for liver METs. Please remember...

https://connect.mayoclinic.org/comment/1203487/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 7:34am

Comment

I’ve been on Ocreotide for over 2 years, approx 16 tumors on my Liver. There has...

https://connect.mayoclinic.org/comment/1274535/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 4:55am

Comment

The oncologist feels that the Zometa will strengthen the areas in my spine and pelvis. One...

https://connect.mayoclinic.org/comment/1143611/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

16 Tumors were discovered on my liver December 2022. Started on Lanreotide for 3 months, switched...

https://connect.mayoclinic.org/comment/1111382/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

I am going back in two months to get another CT of my lungs as well...

https://connect.mayoclinic.org/comment/1360055/

Discussion: stage 1A Net removed from upper left lobe

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30 1:02pm

Comment

I'm in the UK and enquired about histotrypsy which was under a trial, now ended, at...

https://connect.mayoclinic.org/comment/1181417/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 28, 2024

Comment

Hi, see above on 7/11 from me previously in re: to history. Stage 4 PNET, with...

https://connect.mayoclinic.org/comment/1109828/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Comment

I have a 3 cm tumor near the tail of my pancreas, and “too numerous to...

https://connect.mayoclinic.org/comment/1015671/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...

https://connect.mayoclinic.org/comment/1381475/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28 4:02pm

Digestive Health

Follow

16400

2 minutes ago

Follow

8901

4 minutes ago

Visiting Mayo Clinic

Follow

5952

42 minutes ago

Pancreatic Cancer

Follow

3115

57 minutes ago

Follow

1640

1 hour ago