Neuroendocrine Tumors (NETs) Support Group

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Comment

I met with my oncologist. The big tumors on my pancreas are about half the size...

https://connect.mayoclinic.org/comment/834133/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

This is all very new to me. I was just diagnosed in December 2022. I have...

https://connect.mayoclinic.org/comment/804031/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

Comment

Hi, I have been on lanrwotidw over 4 years. I started with a banana sized net...

https://connect.mayoclinic.org/comment/1275008/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 3:28pm

Comment

I had 4 Lutathera treatments, and if possible would have stayed on them indefinitely. No side...

https://connect.mayoclinic.org/comment/1302753/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12 5:16pm

Comment

Hello @katinka58, I'm sorry to hear the recent MRI showed more problems with your husband's lung....

https://connect.mayoclinic.org/comment/1269539/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 4:01pm

Comment

I have not heard where PRRTwas your first course of treatment, then CAP/TEM. Of course we...

https://connect.mayoclinic.org/comment/1190917/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver....

https://connect.mayoclinic.org/comment/856275/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

I am interested in hearing from anyone who has an insulinoma neuroendocrine tumor. I have been...

https://connect.mayoclinic.org/comment/786468/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 19, 2022

Comment

I was diagnosed in 2019 with NETS of the liver my tumors were extremely large and...

https://connect.mayoclinic.org/comment/1148532/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2024

Comment

He has actually never had Covid. I do not think there is a link with Covid...

https://connect.mayoclinic.org/comment/1299842/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8 12:38pm

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