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Discussions (128)
Comments (1,498)
Comment
I think histotripsy is pretty exciting. Watch the videos on it. Yes, it was just approved...
https://connect.mayoclinic.org/comment/949922/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 18, 2023
Comment
Hello, My name is Lenora and this is my first time commenting on the NETs website....
https://connect.mayoclinic.org/comment/668493/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 6, 2022
Comment
I wish I had an answer for you, but I doubt that even your doctor can...
https://connect.mayoclinic.org/comment/867084/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
Hi vtn, I did the watch and wait for a small PNET on the head of...
https://connect.mayoclinic.org/comment/859339/
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Discussion:
Just diagnosed with PNET: Any thoughts on watch & wait approach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2023
Comment
Hi Kim I posted about Histrotripsy a while ago, but more info comes out every day....
https://connect.mayoclinic.org/comment/1146088/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 23 10:54am
Comment
I'm also on Lanreotide...have had two injections so far. I have 3 TACE treatments with the...
https://connect.mayoclinic.org/comment/830111/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 22, 2023
Comment
I am new to the group. Thanks for listening. Some quick background. I was diagnosed with...
https://connect.mayoclinic.org/comment/876491/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 11, 2023
Comment
Welcome I too am a new to NETS, just being diagnosed in late May. My Carcinoid...
https://connect.mayoclinic.org/comment/162796/
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Discussion:
Diagnosed with aggressive NET. Happy to see this group!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 28, 2017
Comment
I have just returned from my week at Mayo so I wanted to post a quick...
https://connect.mayoclinic.org/comment/593410/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10, 2021
Comment
Hi Teresa, Thanks for following up. I have surgery scheduled for October 21st to have the...
https://connect.mayoclinic.org/comment/636553/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2021
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