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Discussions (128)
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Comment
In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...
https://connect.mayoclinic.org/comment/815722/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22, 2023
Comment
I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...
https://connect.mayoclinic.org/comment/812958/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 17, 2023
Comment
I have carcinoid cancer stage 4 diagnosed 2 years ago with tumors spread to liver and...
https://connect.mayoclinic.org/comment/110437/
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Discussion:
Carcinoid Syndrome & Autoimmune Diseases.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 13, 2016
Comment
I found out 3 years ago that I have net cancer. Originated in small intestines and...
https://connect.mayoclinic.org/comment/848467/
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Discussion:
Differentiating Carcinoid syndrome from MCAS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose...
https://connect.mayoclinic.org/comment/943115/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 6, 2023
Comment
@hollywood817 I appreciate all of your updates as you go through various treatments. Regarding the cough,...
https://connect.mayoclinic.org/comment/866925/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
I did have a biopsy in Dec 2022. It was very painful since the IR said...
https://connect.mayoclinic.org/comment/901227/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2023
Comment
I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and...
https://connect.mayoclinic.org/comment/811172/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
Hi Ipate. Sorry to here of your multiple problems. I did not have any problems and...
https://connect.mayoclinic.org/comment/317669/
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Discussion:
Could I have NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28, 2020
Comment
I was diagnosed in January 2020, grade 3 NETs with tumors in liver, lungs, pancreas, bones,...
https://connect.mayoclinic.org/comment/828078/
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Discussion:
High grade 2 and 3 neuroendocrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 18, 2023
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