Neuroendocrine Tumors (NETs) Support Group

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Comment

Sophiarose, the radiologist and doctors want most of the Octreotide or Lanriotide out of your system...

https://connect.mayoclinic.org/comment/1169494/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...

https://connect.mayoclinic.org/comment/1208675/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:09pm

Comment

My husband has NETS stage 4 with tumors throughout his skull and body. One tumor was...

https://connect.mayoclinic.org/comment/1396598/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19 10:41am

Comment

My partner diagnosed with CRC 6 mths ago. Had surgery but METs to multiple bone lesions....

https://connect.mayoclinic.org/comment/1386977/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4 10:12pm

Comment

We've posted the story before just to reiterate: My husband has stage 4 NETS with tumors...

https://connect.mayoclinic.org/comment/1393120/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 9:41pm

Comment

Hola, han pasado 7 semanas de la última aplicación de lutecio y las crisis carcinoides si...

https://connect.mayoclinic.org/comment/616929/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2021

Comment

I have neuroendrocrine tumors in my liver.six years ago it was near my bowels. Then the...

https://connect.mayoclinic.org/comment/1109539/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2024

Comment

My husband was switched from Octreotide to Lanreoride 4 mos. ago & he said he has...

https://connect.mayoclinic.org/comment/1060449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Comment

Yes, unfortunately our facility couldn’t get me in until July 19th. I then get my lenreotide...

https://connect.mayoclinic.org/comment/881999/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

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