Neuroendocrine Tumors (NETs) Support Group

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Comment

Exactly. Neck to pelvis. I have had kidneys and liver issues for a while. Out of...

https://connect.mayoclinic.org/comment/893469/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2023

Comment

I recently had a bland embolization for liver metastasis 5 weeks ago They did my right...

https://connect.mayoclinic.org/comment/814539/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

My heart goes out to all of use!! Dealing with NETs is a struggle I have...

https://connect.mayoclinic.org/comment/1113078/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 6:58am

Comment

Hello @mkmm and welcome to Connect. I understand that you are interested in finding someone else...

https://connect.mayoclinic.org/comment/726846/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2022

Comment

Hi, Pete. I've had a similar situation. I had a robotic surgery for my PNET in...

https://connect.mayoclinic.org/comment/817091/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...

https://connect.mayoclinic.org/comment/807089/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

I have NETS mets to the liver with unknown primary and underwent PRRT treatment at Mayo...

https://connect.mayoclinic.org/comment/767329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

Comment

Hi @hopeful33250, I had this done as an outpatient procedure. It took two sessions. The first,...

https://connect.mayoclinic.org/comment/769013/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2022

Comment

5 months ago, I had a 'gut' feeling (no symptoms) and chose to pay for a...

https://connect.mayoclinic.org/comment/916496/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Comment

Has debulking surgery ever been suggested for your sister? I had that plus gallbladder removal as...

https://connect.mayoclinic.org/comment/935416/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

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