Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi, 1 year ago I had surgery to remove two liver mets. My surgeon said that...

https://connect.mayoclinic.org/comment/758820/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2022

Comment

Happy to here you doing better , I just joined this group and it’s paying off...

https://connect.mayoclinic.org/comment/747593/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

Comment

Seems like it is functional gastrinoma tumor and so is Jon with symptoms of diaharrea. Whipple...

https://connect.mayoclinic.org/comment/1288593/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 4:22am

Comment

It depends on the tumor type, biology, location, and treatment response. Overall, liver lesions are very...

https://connect.mayoclinic.org/comment/1315812/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 12:55pm

Comment

@osiejay26… I hope you have received results of your recent scans. Since I have NET with...

https://connect.mayoclinic.org/comment/805406/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

Comment

I had net tumor on small intestine was removed with 3ft of intestine on 5/22, looks...

https://connect.mayoclinic.org/comment/753325/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

Comment

The transplant was not done at Mayo, at Froedtert Hospital in Milwaukee, WI. The recovery has...

https://connect.mayoclinic.org/comment/1366630/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8 5:32pm

Comment

Hi. I also have NET starting in the lung. It has spread to liver and lymph...

https://connect.mayoclinic.org/comment/835071/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

Today I had a visit with my oncologist after the surgery. Original huge tumor of the...

https://connect.mayoclinic.org/comment/823714/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Comment

I just had to look up Sandostatin. 😊 It looks like maybe it’s used for diarrhea....

https://connect.mayoclinic.org/comment/1205405/

Discussion: Anyone had a large NET in the liver? What treatment did you have?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 2:29pm

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