Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband has several tumors in his skull. His 1st tumor between the illium and bowel...

https://connect.mayoclinic.org/comment/1414095/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12 3:28pm

Comment

@doonman My husband will have been on Lanriotide for 3 year on January 3, 2026. His...

https://connect.mayoclinic.org/comment/1449558/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29 1:08pm

Comment

My husband has Stage 4 Nets with tumors throughout his skull and body. He had 1...

https://connect.mayoclinic.org/comment/1407468/

Discussion: 2nd 3 month follow up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3 11:08am

Comment

@rose2522 The frustration and second guessing is difficult. My husband's 1st tumor was found in 1995...

https://connect.mayoclinic.org/comment/1436127/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11 2:09pm

Comment

My personal experience is prrt is a four hour long session finishing up with a landreotide...

https://connect.mayoclinic.org/comment/1258436/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 9:31am

Comment

I went to 2 local oncologists, 1 at Penn Medicine and 1 at Dana Farber. The...

https://connect.mayoclinic.org/comment/1216861/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 6:36pm

Comment

husband has been getting lenreotide every 28 days for 2 years. doesn't like the injection tho...

https://connect.mayoclinic.org/comment/1199704/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

Comment

Hi @Hope33250, a trip to ER complaining of bloating and abdominal pain, and a CT scan...

https://connect.mayoclinic.org/comment/1014237/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Comment

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

Terry998: This is the first time I have found a person willing to talk about Cysts...

https://connect.mayoclinic.org/comment/819547/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

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