Neuroendocrine Tumors (NETs) Support Group

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Comment

4 nights in the hospital after the surgery. Eating mostly plant based diet plus fish. No...

https://connect.mayoclinic.org/comment/853249/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Comment

Thanks for the feedback firepower. I also have grade 3 Ki67 of 42 and am looking...

https://connect.mayoclinic.org/comment/828496/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

Comment

@stevestenberg31 he did last week! Unfortunately not enough uptake of the tracer so PRRT is not...

https://connect.mayoclinic.org/comment/824943/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

I was dx in may with net in small intestine tumor was removed but pep scan...

https://connect.mayoclinic.org/comment/758557/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2022

Comment

Welcome, @amani79. Glad you joined us here. I am a moderator on this site, but on...

https://connect.mayoclinic.org/comment/163138/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

Comment

@k8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my...

https://connect.mayoclinic.org/comment/812349/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Yes, they saw the liver metastases on day 1. In fact they ruled out surgery at...

https://connect.mayoclinic.org/comment/1352512/

Discussion: Insulinoma and back pain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 1:16pm

Comment

@nana120: I am sorry you are experiencing new tumors. Are you seeing a NET Oncologist with...

https://connect.mayoclinic.org/comment/1360091/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30 1:43pm

Comment

I agree with Linda totally. I was diagnosed in 2013 and likely had this cancer much...

https://connect.mayoclinic.org/comment/1273880/

Discussion: Found out my dad has cancer: They say it’s Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 7:56am

Comment

@tgsenn70: I am also NET small intestine primary with liver metastases, diagnosed 10/2022 with 28 day...

https://connect.mayoclinic.org/comment/1282563/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15 1:25pm

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