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Discussions (128)
Comments (1,499)
Comment
When I was diagnosed 10 years ago, there was little information to be found on NET....
https://connect.mayoclinic.org/comment/193066/
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Discussion:
NETs Becomes Newsworthy
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 19, 2018
Comment
Hi @taneall I am in the same boat as your husband...grade 1, stage 4. It is...
https://connect.mayoclinic.org/comment/892998/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 9, 2023
Comment
Hi. Sorry it took me so long to reply. I traveled on Saturday to a NET...
https://connect.mayoclinic.org/comment/163157/
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Discussion:
How to get a second opinion for an international patient??
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 15, 2017
Comment
Hi Joan So you are one of the 75-80 families they have in the study. I...
https://connect.mayoclinic.org/comment/163587/
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Discussion:
NIH clinical study looking for the gene causing carcinoid cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12, 2017
Comment
I have the same cancer as you. I have been on lanreotide almost a year. So...
https://connect.mayoclinic.org/comment/1106183/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15 4:56pm
Comment
Hi! I just came out of the hospital yesterday. Had extensive distal pancreatectomy, spleen and gall...
https://connect.mayoclinic.org/comment/808230/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8, 2023
Comment
My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...
https://connect.mayoclinic.org/comment/802307/
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Discussion:
Just diagnosed with pancreatic NET stage 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 27, 2023
Comment
I was diagnosed in 2002 and mine was already metastasized to liver and lymph nodes. I...
https://connect.mayoclinic.org/comment/101985/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 11, 2016
Comment
Hi I was diagnosed with a malignant insulinoma last July. The tumor originated in my pancreas...
https://connect.mayoclinic.org/comment/901833/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25, 2023
Comment
Hello carm1011! I have the same diagnosis - pNET well functioning, Grade 2, Stage 4 with...
https://connect.mayoclinic.org/comment/891762/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 7, 2023
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