Neuroendocrine Tumors (NETs) Support Group

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In my opinion, you have the right attitude! Someone somewhere has it worse than we do....

https://connect.mayoclinic.org/comment/1206709/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 10:34am

Comment

@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August....

https://connect.mayoclinic.org/comment/812472/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Hi all! This is my first post so I probably won't be brief, but I have...

https://connect.mayoclinic.org/comment/1103421/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

Comment

Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...

https://connect.mayoclinic.org/comment/1071318/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Comment

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

@fraaseo: PRRT was a life extender for me. I only know how I was cared for...

https://connect.mayoclinic.org/comment/1339216/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 3:48pm

Comment

@prariezebra: I’ve been in a similar situation and know your apprehension & fear well. 4 yrs...

https://connect.mayoclinic.org/comment/1352926/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 3:02am

Comment

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Comment

Just here to share my story and hopefully help others. I was diagnosed at 57 with...

https://connect.mayoclinic.org/comment/1312320/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 8:12am

Comment

Glad to hear that you are going to Mayo. My husband has NETS throughout his skull...

https://connect.mayoclinic.org/comment/1407458/

Discussion: Several inoperable paragangliomas, on lanreotide, now big mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3 11:01am

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