Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello, My husband also has insulinoma. Pancreas metastasized to liver. We have found that a tablespoon...

https://connect.mayoclinic.org/comment/890321/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2023

Comment

Your response is sincerely appreciated - My wife is scheduled for PRRT @Fred Hutch Seattle on...

https://connect.mayoclinic.org/comment/808550/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Comment

In my opinion, you have the right attitude! Someone somewhere has it worse than we do....

https://connect.mayoclinic.org/comment/1206709/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 10:34am

Comment

I don't know your story... sorry. I got progressively sicker for over 3 years before finally...

https://connect.mayoclinic.org/comment/936712/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2023

Comment

I didn’t have a whipped but have a pancreatic tumor and numerous liver tumors. I also...

https://connect.mayoclinic.org/comment/934278/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Comment

I've been on the same journey. Diagnosed March 2024 with PNETS.... Grade 2, Stage 4 metastasis...

https://connect.mayoclinic.org/comment/1333049/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 9:26pm

Comment

@k8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my...

https://connect.mayoclinic.org/comment/812349/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

I have this disease and had my last chemo infusion was 3 wks. ago. They lasted...

https://connect.mayoclinic.org/comment/1059061/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 28, 2024

Comment

Hi everyone, I’m a 59 old male who was diagnosed with stage 4 Neuroendocrine/ acinar cancer...

https://connect.mayoclinic.org/comment/796920/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Comment

It depends on the tumor type, biology, location, and treatment response. Overall, liver lesions are very...

https://connect.mayoclinic.org/comment/1315821/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 1:01pm

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