Neuroendocrine Tumors (NETs) Support Group

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Comment

You have been dealing with it longer than my wife has and seem to have a...

https://connect.mayoclinic.org/comment/867263/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...

https://connect.mayoclinic.org/comment/137527/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2017

Comment

@tufan HI Tufan, I'm sorry to hear that. I hope soon you start getting good treatment...

https://connect.mayoclinic.org/comment/803389/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Comment

@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues...

https://connect.mayoclinic.org/comment/830375/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Welcome to one of the world's crappiest clubs. I'm in exactly your spot. Many elevated endocrine...

https://connect.mayoclinic.org/comment/884116/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

@bnjncrew I was diagnosed with pNET with metastasis to the liver on 8/22/2022. I have completed...

https://connect.mayoclinic.org/comment/883888/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....

https://connect.mayoclinic.org/comment/890587/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2023

Comment

I had my pancreatic cancer surgery in Mar 2020 and 5 months ago my scan showed...

https://connect.mayoclinic.org/comment/937482/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

Hello! I have been there :). My pNet was discovered incidentally during a stroke work-up. Along...

https://connect.mayoclinic.org/comment/1061285/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 8:30am

Comment

Hello fellow NET people. I am posting this as an update to my journey. After 9...

https://connect.mayoclinic.org/comment/1120051/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8 11:07am

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