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Discussions (191)
Comments (2,060)
Comment
I also had small in intestine had surgery soon after finding out they took about a...
https://connect.mayoclinic.org/comment/1208440/
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Discussion:
Can anyone share information about NET in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 1:26pm
Comment
full of gas i have net of small bowel tumor was removed 5/22, i have 3...
https://connect.mayoclinic.org/comment/789668/
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Discussion:
What helps with gas and pain after surgery?
Support Group:
Cancer: Managing Symptoms
Posted: Dec 28, 2022
Comment
Thanks very: much for sharing. Were you taking any medications prior to Lanreotide three months ago?...
https://connect.mayoclinic.org/comment/1171155/
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Discussion:
Experience w/ watch and wait approach for metastatic liver tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2024
Comment
I would definitely see a NET specialist, I have carcinoid syndrome , NET’s started in my...
https://connect.mayoclinic.org/comment/1294461/
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Discussion:
What should I do? Carcinoid symptoms but no answers.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1 4:19pm
Comment
I also have NET pancreas to liver and type 2 diabetes. I am taking CAPTEM. I...
https://connect.mayoclinic.org/comment/836209/
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Discussion:
Anyone dealing with Carcinoid NETs with Diabetes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 2, 2023
Comment
When is your surgery? Or have you already had your surgery? If so, how did it...
https://connect.mayoclinic.org/comment/1122974/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2024
Comment
Hi, I SO feel for your partner! I have primary pancreatic net, liver mets. and had...
https://connect.mayoclinic.org/comment/1294137/
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Discussion:
Lanreotide side effects: diarrhea constipation, what to do?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1 9:41am
Comment
Hello @dak10, I so appreciate hearing from you again with some more information on your journey...
https://connect.mayoclinic.org/comment/827367/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 17, 2023
Comment
I have 20 to 30 Mets to the liver. Have done PRRT, lanriotide, and captem. All...
https://connect.mayoclinic.org/comment/1336778/
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Discussion:
Y90 AND Captem Combo
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 28 5:21am
Comment
I too am Atypical lung net. It has spread to liver and several vertebrae in my...
https://connect.mayoclinic.org/comment/939666/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 1, 2023
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