Neuroendocrine Tumors (NETs) Support Group

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Comment

When my NET was diagnosed I was seeing an oncologist who immediately recommended chemo. At age...

https://connect.mayoclinic.org/comment/1030379/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 9:08am

Comment

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 7:56am

Comment

@helloitsme I had my pre chemo visit at Mayo Phoenix yesterday. Had some blood work done...

https://connect.mayoclinic.org/comment/851513/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

I'm feeling happy, that's for sure. I had asked how can you tell the difference between...

https://connect.mayoclinic.org/comment/102019/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2016

Comment

Hello @amani79 I am sorry to hear of your daughter's diagnosis with NETs and mets to...

https://connect.mayoclinic.org/comment/163136/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

Comment

Chromogranin is a fairly reliable biomarker used to monitor patients with neuroendocrine cancers. Mine was up...

https://connect.mayoclinic.org/comment/882094/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

Hi It's a shame that a blockage had to be the warning sign. I was never...

https://connect.mayoclinic.org/comment/920251/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2023

Comment

I have experienced this and feel something in my armpit lymph node area too. My oncologist...

https://connect.mayoclinic.org/comment/1073038/

Discussion: Lung Nets and pain in arm pit

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23 12:06am

Comment

William, My NEC Carotid Body Paraganglioma was active. Till NEC diagnosis I have been miss-diagnosed twice....

https://connect.mayoclinic.org/comment/971072/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Comment

@rockchick I'm sorry about your diagnosis of NET on the pancreas. As your aware, none of...

https://connect.mayoclinic.org/comment/810956/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

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