Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi, I SO feel for your partner! I have primary pancreatic net, liver mets. and had...

https://connect.mayoclinic.org/comment/1294137/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 9:41am

Comment

This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....

https://connect.mayoclinic.org/comment/849237/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Comment

@fabiant No she had a open incision, about 12" from center of stomach up. So a...

https://connect.mayoclinic.org/comment/848829/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Comment

Your journey is very similar to mine. I live in Maine, so was only able to...

https://connect.mayoclinic.org/comment/1332659/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 11:11am

Comment

I've been on the same journey. Diagnosed March 2024 with PNETS.... Grade 2, Stage 4 metastasis...

https://connect.mayoclinic.org/comment/1333049/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 9:26pm

Comment

Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...

https://connect.mayoclinic.org/comment/827217/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

I also had a grade 1 NET removed from my cecum during colonoscopy. I was referred...

https://connect.mayoclinic.org/comment/1295112/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 1:51pm

Comment

I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small...

https://connect.mayoclinic.org/comment/1280086/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 11:16am

Comment

Thanks for all of that information, @gapsc I know so many NET patients who were misdiagnosed...

https://connect.mayoclinic.org/comment/134270/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2018

Comment

We are a year and half into our journey in living with NET. I can’t remember...

https://connect.mayoclinic.org/comment/932424/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

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