Neuroendocrine Tumors (NETs) Support Group

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Comment

I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Comment

My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...

https://connect.mayoclinic.org/comment/1061064/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 6:49pm

Comment

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Hopeful. I was diagnosed with Islet Cell Cancer, a neuroendricine adenoma carcinoma back in July of...

https://connect.mayoclinic.org/comment/90122/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2016

Comment

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 10:35am

Comment

@hollywood817- Wow... you are going through a lot. Have you by chance had genetic testing done...

https://connect.mayoclinic.org/comment/796472/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

Comment

@firepowr if you don’t mind me asking, what have they said about yours that is considered...

https://connect.mayoclinic.org/comment/813521/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

I started with two rounds of capecitabine/temozolamide, which did not work at all. I switched to...

https://connect.mayoclinic.org/comment/767094/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

Just wanted to comment on this thread as I kind of had a similar experience. In...

https://connect.mayoclinic.org/comment/633582/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 7, 2021

Comment

I am on Creon. It was prescribed to me after surgery. I had a very large...

https://connect.mayoclinic.org/comment/952517/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

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