Neuroendocrine Tumors (NETs) Support Group

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Comment

There are some limitations on it, for it's use now that it is FDA approved. It...

https://connect.mayoclinic.org/comment/1015375/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 9:27pm

Comment

In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out...

https://connect.mayoclinic.org/comment/780134/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Comment

I’ve had 5 lanreotide shots and side effects less each time. Bloating is certainly one of...

https://connect.mayoclinic.org/comment/864105/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2023

Comment

You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came...

https://connect.mayoclinic.org/comment/878357/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14, 2023

Comment

Hi, I’m Alina from Sherman Oaks in the San Fernando Valley near LA. After two years...

https://connect.mayoclinic.org/comment/1170361/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8 7:43pm

Comment

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

Comment

For both of the 72 hour fasts, the endocrinologist ordered. The first was done in the...

https://connect.mayoclinic.org/comment/807790/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

Hello, @netofliver8550 and welcome to Mayo Connect. I am sorry to hear about your liver NETs...

https://connect.mayoclinic.org/comment/333405/

Discussion: NET Stomach Discomfort

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2021

Comment

Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with...

https://connect.mayoclinic.org/comment/932814/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

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