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Discussions (191)
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Comment
My Chromogranin A was 1507 last year and the PET was negative. In February I was...
https://connect.mayoclinic.org/comment/880883/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18, 2023
Comment
Maybe ask you doctor about everolimus. It seemed to help my husband but was at same...
https://connect.mayoclinic.org/comment/837879/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
I know I still have lesions on my liver, not sure on pancreas. For me it...
https://connect.mayoclinic.org/comment/836863/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 3, 2023
Comment
@stevestenburg31: You have been given good advise to ask for a MRI scan. I would add:...
https://connect.mayoclinic.org/comment/1309108/
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Discussion:
Primary Small Bowel NETS, Liver Mets
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 21 5:45am
Comment
Hello @mukul123 and welcome to Mayo Connect. I see that you are looking for direction for...
https://connect.mayoclinic.org/comment/786179/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 18, 2022
Comment
Hello Dr! Thank you for doing this Q&A, as it is much appreciated. If one has...
https://connect.mayoclinic.org/comment/1308381/
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Discussion:
Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29
Support Group:
Pancreatic Cancer
Posted: May 20 8:53am
Comment
Hang in there! I am having my 7th Lan injection tomorrow. Had distal pancreatectomy with spleen,...
https://connect.mayoclinic.org/comment/935344/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 24, 2023
Comment
I was in for a healthy heart check and the ultrasound showed liver spots. Didn’t really...
https://connect.mayoclinic.org/comment/729640/
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Discussion:
PRRT for NETs: Questioning whether I should continue or not
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 22, 2022
Comment
Interesting. Did they use TAE also to reduce liver tumors? That was one of the first...
https://connect.mayoclinic.org/comment/1366526/
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Discussion:
Interested in your experience with treatments of PRRT vs surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 8 2:33pm
Comment
It’s so hard to generalize one experience to others except as an example. In 2014-15, I...
https://connect.mayoclinic.org/comment/1001387/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2024
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