Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi, thank you! We did meet with the NET specialist. Still wants to give my mom...

https://connect.mayoclinic.org/comment/311789/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2020

Comment

I would strongly request a PET. I've had one recently to see if my dipnech tumours...

https://connect.mayoclinic.org/comment/1142721/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

My tumors are not in my lungs but in response to the flushing, I experienced flushing...

https://connect.mayoclinic.org/comment/1107435/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2024

Comment

EmilyFaith, l can hear your fear in your words. My question is do you have a...

https://connect.mayoclinic.org/comment/1062216/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Comment

I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...

https://connect.mayoclinic.org/comment/1054468/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Comment

After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...

https://connect.mayoclinic.org/comment/1007463/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2024

Comment

One thing to ask is about the coughing and breathing exercises you must do after surgery....

https://connect.mayoclinic.org/comment/990103/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

Comment

@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...

https://connect.mayoclinic.org/comment/968340/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2023

Comment

Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...

https://connect.mayoclinic.org/comment/958681/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2023

Comment

I have some small nodules in my lungs but my NET doctor said everyone has them...

https://connect.mayoclinic.org/comment/912003/

Discussion: FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2023

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